Brief Title
COPD Patient-Powered Research Network
Official Title
COPD Patient-Powered Research Network
Brief Summary
The COPD Patient-Powered Research Network (COPD PPRN) is a patient research registry with the
goal of enrolling 75,000 or more COPD patients and those at risk who are willing to share
their heath information over several years and participate in research. The COPD PPRN has
built an online platform to allow volunteers to enroll electronically, complete surveys, be
contacted about studies they qualify for and become connected to COPD resources. The goal of
the registry is to speed research to find better treatments for COPD and ultimately a cure.
Study Type
Observational [Patient Registry]
Primary Outcome
Patient Reported Outcome Measurement Information System-29 (PROMIS-29)
Condition
Chronic Obstructive Pulmonary Disorder
Intervention
Patient Reported Outcomes
Publications
* Includes publications given by the data provider as well as publications identified by National Clinical Trials Identifier (NCT ID) in Medline.
Recruitment Information
Recruitment Status
Other
Estimated Enrollment
75000
Start Date
August 2014
Completion Date
January 2030
Primary Completion Date
January 2025
Eligibility Criteria
Inclusion Criteria:
- 18 years or older that says yes to one of the following:
- COPD diagnosis
- Current or former smoker
- Family history of respiratory disease
- Symptomatic of respiratory disease
Exclusion Criteria:
- Non-English speaking
Gender
All
Ages
18 Years - N/A
Accepts Healthy Volunteers
Accepts Healthy Volunteers
Contacts
, 866-731-2673, [email protected]
Location Countries
United States
Location Countries
United States
Administrative Informations
NCT ID
NCT02803242
Organization ID
COPDPPRN
Responsible Party
Sponsor
Study Sponsor
COPD Foundation
Collaborators
Kaiser Foundation Hospitals, Center for Health Research
Study Sponsor
, ,
Verification Date
February 2020