Latest News
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There are more than 7,000 rare diseases identified in the world today. While “rare” means that less than 200,000 people in the US are affected, to suffer from a rare disease is not actually rare at all. Around 10% of the American population suffers from a rare disease. A shocking... -
IRVING, Texas -Acentrus Specialty™, a national network of health systems and hospitals committed to providing specialty pharmacy care for their patients, has finalized an agreement with Chiasma, Inc. (NASDAQ: CHMA) to provide qualified Acentrus clients access to MYCAPSSA® (octreotide), delayed-release oral capsules for long-term maintenance treatment in acromegaly patients who...
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CHICAGO & CAMBRIDGE, Mass. – Exicure, Inc.® (NASDAQ: XCUR), a pioneer in gene regulatory and immunotherapeutic drugs utilizing spherical nucleic acid (SNA™) technology, today announced the appointment of Brian C. Bock as the Company’s Chief Financial Officer (CFO) effective immediately. “Exicure’s proprietary SNA platform technology holds great potential for treating...
Videos
Rare disease spotlight
All patients deserve access to affordable care.
But discriminatory healthcare metrics like quality-adjusted-life-years (QALY) allow health insurance plans to refuse coverage for rare disease treatments.
http://ow.ly/2fVL50DMuiP
Check out my interview with @CNN!
https://www.cnn.com/2021/05/13/health/processed-food-chronic-disease-wellness/index.html
"I’ll never forget the blindingly bright lightbulb moment I had when I realized my fibromyalgia symptoms had always been chronic porphyria."
http://ow.ly/Mb6N50EEP3H
We are excited to introduce you to Good Dogg Beverage, a new philanthropic company that makes premium hard seltzer to support causes they care about, like http://KIF1A.ORG. Learn more on the http://KIF1A.ORG blog!
https://www.kif1a.org/blog/good-dogg-beverage-partners-with-kif1a-org-to-support-our-mission/