Rare diseases can’t wait. Rather than sit on the sidelines, many patients are taking the initiative to do what they can to accelerate the diagnostic process, improve understanding of their disease and spark research into potential therapies. The 2023 NEXT Report from nonprofit advocacy group, Global Genes, shares stories of...

After Kara Miller woke up with blurry vision she couldn’t blink away, her primary care doctor spotted something that would change her life. Kara, then 17, had a lesion on one of her optic nerves. Not only did the damaged nerve explain why she was seeing double, it was telltale...

Cambridge, Mass. — Biogen Inc. (NASDAQ: BIIB) announced the appointment of Chuck Triano as Senior Vice President, Head of Investor Relations effective 10 April 2023. Mr. Triano will report to Michael McDonnell, Executive Vice President and Chief Financial Officer. “Chuck will bring invaluable industry insights and a strong network of...