SANTA CRUZ, California – New Living with Lambert-Eaton Myasthenic Syndrome (LEMS), a rare autoimmune disorder affecting the nerves and muscles, often requires seeing multiple specialists to help with your condition. That’s partly because 50 percent to 60 percent of cases are paraneoplastic, meaning they co-occur with cancer, particularly small-cell lung...

COLUMBUS, Ohio — Andelyn Biosciences Inc., a patient-focused cell and gene therapy Contract Development and Manufacturing Organization (CDMO), today announced the unveiling of The Andelyn Foundation, a nonprofit organization dedicated to supporting families living with rare and ultra-rare diseases through awareness, fundraising, and compassionate community engagement. More than 10,000 rare diseases have...

NORWELL, Mass. — The National Organization for Rare Disorders (NORD®) today announced the addition of seven leading academic medical and research centers to its national NORD® Rare Disease Centers of Excellence Network, expanding collaboration to improve care and accelerate research for the more than 30 million Americans living with rare conditions. With...