Latest News
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A little boy from Cheam has been diagnosed with a condition so rare that, since its discovery in 1965, fewer than 25 cases have been recorded worldwide. Alfie Mumford, four, suffers from the complex Gillespie syndrome, characterised by partial aniridia, meaning that part of his iris is missing and his... -
Margaret Flynn is still waiting for a lung transplant. Now, the Ladysmith resident has been on the current waiting list longer than anyone else. “It’s a rare match,” said Flynn, who has O negative blood as well as certain anti bodies in the blood, making her difficult to match to...
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Christine Falleti has spent much of her life combating the crippling effects of cystic fibrosis (CF). Now 34, she is painfully aware that she’s approaching the age when most people with CF die. Two friends with the disease already have. But last year she took part in a test of...
Videos
Rare disease spotlight
Read this inspiring article on how PhD student Katherine Gulliver’s personal experience of Williams Syndrome, influenced her further educational and professional paths. We are lucky to have Katherine as part of our Regional contacts team for Devon and Somerset. https://twitter.com/PlymUni/status/1265272895845986310
Our BA Education degree isn't just for future teachers.
Find out how the course inspired PhD student Kat Gulliver to study inclusive education abroad, and how her knowledge has supported her charity work with @HCPT and @WSF_UK
Find out more 👇
https://www.plymouth.ac.uk/courses/undergraduate/ba-education/katherine-gulliver
Have you signed up to be a part of #BeyondXLH, the Disease Monitoring Program for #XLH yet? http://www.BeyondXLH.com #StrongDataStrongerLives
This summer, we are pleased to introduce a series of leadership skill-building webinars for Young Adult Representatives of RDLA (YARR) members.
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