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  • LOS ANGELES – 54 honorees representing 23 states participated in the 2022 Donate Life Rose Parade® float, “Courage to Hope.” With ages ranging from 16 to 71 years old for riders and walkers, and from 9 days old, to 55 years old for floragraph honorees, these participants and their families...
  • As we enter what I consider to be the most wonderful time of the year, I reflect on why this season of giving is so magical. Does it really have anything to do with the gifts under the tree, the parties, or the Christmas lights? Many of us fill our December...
  • LUND, Sweden – Immunovia AB (publ.) announced today that the Company’s President and Chief Executive Officer, Patrik Dahlen, has informed the Board of Directors of his intention to step down, for personal reasons. The search for a new CEO will start immediately. Although Patrik Dahlen will remain with the company for another six months...


Rare disease spotlight


Hay muchas personas #invisibles alrededor de la #atrofiamuscularespinal #AME #SMA
Pacientes y familias conocen bien a quienes les apoyan (sanitarios, apoyos, investigadores,…)
La concienciación social es fundamental‼️
Gr. @FundameNet @biogen
Cc @SMAEurope

Great article highlighting benefits of universal #NewbornScreening

“I urge other states & territories to screen newborns for both these genetic disorders as we are in NSW to give babies with SMA or SCID the best chance of survival”
Health Min Brad Hazzard

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