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Rare disease spotlight


June is #Dravet Syndrome Awareness Month. Join DSF in whatever capacity you can to help us spread awareness!

Have you signed up to be a part of #BeyondXLH, the Disease Monitoring Program for #XLH yet? #StrongDataStrongerLives

This summer, we are pleased to introduce a series of leadership skill-building webinars for Young Adult Representatives of RDLA (YARR) members.

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