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Rare disease spotlight


Hay muchas personas #invisibles alrededor de la #atrofiamuscularespinal #AME #SMA
Pacientes y familias conocen bien a quienes les apoyan (sanitarios, apoyos, investigadores,…)
La concienciación social es fundamental‼️
Gr. @FundameNet @biogen
Cc @SMAEurope

Great article highlighting benefits of universal #NewbornScreening

“I urge other states & territories to screen newborns for both these genetic disorders as we are in NSW to give babies with SMA or SCID the best chance of survival”
Health Min Brad Hazzard

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