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We need your help to build a GLOBAL CHAIN OF LIGHTS 💫 illuminating emblematic buildings all around the world for #RareDiseaseDay!

Do you want to contribute? 👀

🕌 Follow these guidelines!
http://download2.rarediseaseday.org/2021/How_to_illuminate_buildings_toolkit.pdf

In today's #DecodingDravet blog @Science_Hood discusses what to consider before sharing too many personal details on #socialmedia while in an active #clinicaltrial https://www.dravetfoundation.org/why-be-cautious-about-sharing-personal-experiences-in-an-active-clinical-trial-2021-01-22/

Last day to register for #RareAcrossAmerica2021

Start the year by making an impact on federal policy close to your home. Share your rare disease story and meet other rare disease advocates!

To register visit: http://RareAcrossAmerica.org

Join us Tuesday, February 9th at 6:30pm EST for the HAEA Webinar: 2021 Legislative Update and Welcome to Congress!

Register here: https://fundraise.haea.org/event/us-haea-legislative-update-and-welcome-to-congress-webinar2021/e320881

#HAEA #HereditaryAngioedema #HAE #Advocacy #HMCW #Webinar

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