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A federal appeals court in the U.S. has issued a mandate that effectively vacates the 2019 regulatory approval of Jacobus Pharmaceutical’s Ruzurgi for the treatment of children with Lambert-Eaton myasthenic syndrome (LEMS). The ruling, by the U.S. Court of Appeals for the 11th Circuit, directs a lower district court to... -
SAN DIEGO – Kintara Therapeutics, Inc. (Nasdaq: KTRA) (“Kintara” or the “Company”), a biopharmaceutical company focused on the development of new solid tumor cancer therapies, announced that a multiyear research grant from Luxembourg National Research Fund (FNR) and Cancer Foundation Luxembourg has been awarded to Doctor Anna Golebiewska Ph.D., co-leading...
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REDWOOD CITY, Calif. & RESEARCH TRIANGLE PARK, N.C. – Kriya Therapeutics, Inc., a fully integrated company pioneering novel technologies and therapeutics in gene therapy, announced today that it has acquired Warden Bio, a company developing novel AAV-mediated gene therapies for glycogen storage disorders (GSDs). Under the agreement, Kriya has obtained...
Videos
Rare disease spotlight
J. A. García Ranea y M.A. Medina, investigadores de la U741 @CIBERER en la @InfoUMA #Málaga, han liderado un estudio sistémico aplicado al análisis de las #EERR, #cánceres raros, dependientes de la #angiogénesis (A-RD)
#Bioinformatica👏👏@_ibima
https://www.ciberer.es/noticias/un-estudio-sistemico-profundiza-en-el-conocimiento-molecular-de-las-enfermedades-raras-dependientes-de-la-angiogenesis
Grandes‼️
@EspanaKbg #SINDROMEKBG es un ejemplo:
- de lucha por la visibilidad #KBG
- de trasmitir esperanza
- de búsqueda de apoyos
- mas investigación y ayudas
Gracias por ser así, espejo para muchas familias con #EERR https://twitter.com/EspanaKbg/status/1555278550781001728
Las familias de Charo y Samuel nos muestran desde #SanAntonio y #SantaEularia #Ibiza que es es vivir con el Síndrome #Kbg.
Gracias al informativo de @TEFTV TEF el canal televisión Eiviissa y Formentera por hacernos un poco mas visibles. ¡Gracias!
#enfermedadesraras #inclusion
Why is the Canadian corporate and government-controlled media ignoring @rupasubramanya's scoop that the @JustinTrudeau government lied about science to impose a charter-defying travel ban for millions of Canadians? When did the @CBC become the propaganda arm for Trudeau? https://twitter.com/rupasubramanya/status/1555236386042781696
"Media ignores HUGE Trudeau travel ban scandal story". "This is a massive story".If you had media of any integrity, they should be all over it. This is a very big story." Scathing commentary on mainstream Canadian media's lack of interest in my story. https://www.spreaker.com/user/radio_baloney/media-ignores-huge-trudeau-travel-ban-sc