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🎊Today is #WorldNarcolepsyDay - Sept 22, 2021! Today is a day dedicated to raising awareness about narcolepsy on a GLOBAL scale. Today is a day to celebrate the strength and perseverance of those living with #narcolepsy around the world. ✨ Learn more: https://project-sleep.com/worldnarcolepsyday/

Almost exactly 9 years ago I was diagnosed with Friedreichs ataxia and told I’d be confined to a wheelchair within 10 years… yesterday with a lot of help from my best mates we climbed a mountain!! @AtaxiaUK @AtaxiaFighting @Ataxia_and_Me @CureFA_org @BillyW100

September is Dystonia Awareness Month! Please spread Dystonia Awareness. #dystonia #dystoniaawareness #dystoniacureneeded #dystoniaawarenessmonth2021 #stdystonia

Mitochondrial Disease Awareness Week is in full swing! Check out this quick video from my daughter (@Bake4Mito) encouraging everyone to go #GreenForMito this week! She even put up with my #DadJokes. 😂

#WorldMitoDiseaseWeek #MitoAwarenessWeek #Mito #MitoAction #RareDisease

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