Events

 You are cordially invited to join the Second International Klaus Betke Symposium. This year’s topic is “Rare diseases of the human immune system – neutrophil granulocytes and biology of mitochondria“. The meeting will be held on March 6 – 7, 2015 at the Dr. von Hauner Children’s Hospital of the...
The EXPO 2015 will be hosted by Milan, between May 1st and October 31st, and it will explore the theme “Feeding the Planet, Energy for Life”, a topic of great importance for the future of our lives and for world health: such world exposition is expected to attract more than...
For twenty one years the European Forum for Good Clinical Practice has acted as a forum to bring patients, researchers, sponsors, competent authorities and ethics committees together and debate current topics. It is one of the most important fora for multi stakeholder debate. In the 2015 Annual Conference we will...
LSV Healthcare Conferences is proud to announce its Europe Clinical Trials Supply Conference 2014 to be held on October 1 – 2, 2014 at Cologne, Germany. This is to be co-located with our successful Europe Regulatory Affairs and Intellectual Property Conference 2014 and Europe Drug Discovery and Pre-clinical Development Conference...
The Patient Engagement throughout the Full Spectrum of Drug Development workshop will bring together regulators, industry professionals, and the full spectrum of patients to include patient groups, advocates, and caregivers to discuss their needs and objectives for engaging during the medical product development process, their methods and practices, their experiences...
The Rare Disease Economics and Orphan Drug Commercialization, organized by the World Congress will take place from 22nd September to the 23rd September 2014 at the Hilton Boston Back Bay in Boston, USA. The conference will cover areas like Discover recent findings on global orphan drug patient access issues from...
Finding out that you or a loved one has atypical hemolytic uremic syndrome (aHUS) can be difficult. But you are not alone. In fact, sharing experiences with other patients and families affected by aHUS can help decrease isolation and provide valuable information and support. In the 2014 aHUS Meetup you...
Anticipated goals of the conference and use of results: 1) Organize and conduct a conference that is thematically focused on growing and extending knowledge in HAE; and which become progressively more ambitious over time, reflecting the anticipated advances in research. 2) Identify topics and speakers that will clarify the most...
It is intended that the in-depth, interdisciplinary dialogue of this expert working group will formulate an emerging consensus on a working definition of symptom clusters and, specific gaps and opportunities that provide a foundation for a transformative strategic blueprint to guide future symptom cluster research in rare cancers. In addition,...
  RNase H 2014 will be hosted under the auspices of the RNA Society. As in the past, the focus will be on the many aspects of RNases H including structure, biochemistry, genetics and the nature of their substrates. The meeting provides a unique opportunity to bring together experts in...
  Hosted by the Radboud university medical center, in association with the A-T society UK, the bi-annual A-T Clinical Research Conference 2014 brings together leading figures from within and beyond the fields of clinical science and translational research in Ataxia-Telangiectasia. The main objective of the conference is to share knowledge...
The second conference organized by the International Rare Diseases Research Consortium (IRDiRC) in collaboration with the BGI is gathering stakeholders active in the field of rare disease from across the globe. It will be held on 7-9 November 2014, with two days of conference – where four exciting parallel tracks...
The Third Joint Symposium on Neuroacanthocytosis, “New frontiers in Neuroacanthocytosis and Neurodegeneration with Brain Iron Accumulation: From Benchside to Bedside,” will take place in Stresa, Italy at the Hotel La Palma October 30th – November 1st 2014. The conference is addressed to Neurologists, Internists, Hematologists and Biotechnologists who deal with...
The 16th Biennial Meeting of the European Society for Immunodeficiencies (ESID 2014), being held in the enchanting city of Prague, Czech Republic, offers unparalleled access to the latest research and analysis in the field. Meeting participants will gain valuable insights into innovative perspectives in both basic and clinical research. The...
  I am pleased to invite you to Toronto, Ontario Canada for the 30th Annual Meeting of the Histiocyte Society, October 28-30, 2014. From amusement parks and lake beaches to historical landmarks and museums, Toronto has something for everyone that we hope you’ll be able to take some time to...
On behalf of the International Society for Neonatal Screening we are honored to invite you to the 9th ISNS European Neonatal Screening Regional Meeting that will take place from Sunday 12th to Wednesday 15th October 2014 in Birmingham, United Kingdom.   The City of Birmingham is in the heart of...
The Organizing and Program Committee invite you to take part in the 9th International Symposium for Marfan Syndrome and Related Disorders at the Novotel Paris Vaugirard Montparnasse in Paris, France, on September 25-27, 2014. The symposium program includes 12 sessions of invited presentations, select abstracts for oral presentations, and two...
We are pleased to welcome you to Marseille for the fourth Annual Brain Metastases Research and Emerging Therapy Conference. Last year’s successful edition encouraged us to once again organize this conference. This year the EORTC Brain Metastases platform has also invited the RTOG BM task force, the EANS tumor section...
The NCRD 2014 conference is organised by the Finnish Network for Rare Diseases and the Nordic Rarelink Group together with the Ministry of Social Affairs and Health in Finland. The conference will take place at the Royal Crowne Plaza Hotel in Helsinki. Conference program focuses on the Nordic cooperation within...