BELFAST, Northern Ireland – People with rare diseases in Northern Ireland have been sharing their stories through a series of short films. There are more than 7,000 known rare conditions worldwide. It is estimated that more than 110,000 people, or one in 17, are impacted by rare conditions in Northern...
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RALEIGH, N.C. – The V Foundation for Cancer Research, a top-rated cancer research charity, is recognizing Pediatric Cancer Awareness Month by highlighting the need for pediatric cancer research funding through a spotlight on events, partnerships, grants, thrivers and researchers with a goal of stopping childhood cancers. The month-long campaign, in...
For 13 consecutive years a select group of students has been solving math problems, diagramming sentences and completing science experiments — without missing a single day of school. That’s roughly 2,340 school days in a row without being marked absent. No skipping to go to a Rangers game. No fake...
BAKERSFIELD, Calif. — For those who are disabled, a wheelchair ramp can make all the difference when it comes to convenience. But for an east Bakersfield boy, that difference has been stolen. Jonathan Albiar, 12, and his parents said the thief has stolen more than just property; they’ve stolen compassion....
David Fajgenbaum, MD, was a college football player at Georgetown University in 2004 when his mother passed away from cancer. The loss inspired the athlete to become a doctor himself: “I wanted to treat patients in memory of my mom,” he says. But three years into medical school, the then-25-year-old’s...
It is humbling to know that we are the beneficiaries of those who have gone before us. We stand on the shoulders of those who worked hard for us to benefit from their efforts and discoveries. We need not look further than the name of the disease that touches this...
MOBILE, Ala. — A special story about a three-year-old boy who needs the public’s help. Alijah Cunningham was born with a rare disease that caused him to lose all of his fingers and toes. Now, his parents are on a journey to gift him with what he lost. But you...
ANDERSON — “Every day is so different,” said Amanda Pfeiffer of Anderson. Pfeiffer was referring to her infant son, Kohen, who lives with a condition known as epidermolysis bullosa. “Like right now, he can’t be out in the heat and humidity, because it makes him blister really easily. It’s an...
Little Emma Gardner will have to take daily medication for the rest of her life after being born with a deadly genetic condition. Two-year-old Emma was diagnosed when she was just eight-weeks-old with cystic fibrosis, which affects her breathing and digestive system. Sufferers on average live only until their 30s...
RESEARCH TRIANGLE PARK, N.C. – Worldwide Clinical Trials, Inc., (Worldwide) the industry’s leading global, midsized, full-service contract research organization (CRO), announced researchers Anna Gres, Ph.D. and Matthew Confeld, Ph.D., Pharm.D., have been selected for the esteemed Michael F. Murphy Clinical Research Methodology Fellowship Program. Established in 2017, the competitive two-year program...