New York, NY – Weill Cornell Medicine researchers and the TB Drug Accelerator have received two grants totaling $6.8 million from the Bill & Melinda Gates Foundation to study tuberculosis (TB) drug development. This effort will expediate finding new drug targets within the bacteria and identifying new lead compounds, two...
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CHENGDU, China — Kicking off the New Year with remarkable achievements, Chengdu-based WestGene made a significant impact at the 3rd mRNA-Based Therapeutics Summit in Berlin, Germany. Renowned for her pivotal role in mRNA research, Dr. Xiangrong Song, co-founder and CEO of WestGene, presented the latest advances in the company’s oncology...
Rare diseases can’t wait. Rather than sit on the sidelines, many patients are taking the initiative to do what they can to accelerate the diagnostic process, improve understanding of their disease and spark research into potential therapies. The 2023 NEXT Report from nonprofit advocacy group, Global Genes, shares stories of...
WHITBY — It’s been only a year since Katie Sutherland lay in a hospital bed clinging to life, but the Whitby teen is getting ready to compete in an international sports competition. Katie, 16, underwent a double lung transplant last year and since then has been building her strength back...
WICKLOW town joined the global chain of lights celebrating Rare Disease Day
Josh Bigham was saved, not by fire and brimstone, but by flamebroiled cheeseburgers and Coldstone Creamery. He’s found heaven in the sugary goodness of rocky road ice cream, the hickory-smoked flavor of a perfectly grilled steak and the well-balanced blend of a sweet and spicy barbecue sauce. For 15 years,...
Dallas — Inside Kelly Eakin’s garage in suburban Maryland, two of the world’s smallest wheelchairs gather dust. Just a few years ago, these wheelchairs were in high demand. There was a constant waiting list of eight or nine young children with spinal muscular atrophy, or SMA, a devastating disease that...
Mumbai – A 38-year-old woman who fell off a train last week thought she was lucky to have survived the accident despite suffering severe head and neck injuries. Shalini had reasons to think so as her CT scan came out normal. However, little did she know that her injury would...
LANSING, Mich. (WLNS) – on May 31 people strapped on their skates to raise money for a good cause. Chelsea Paradise was diagnosed with Huntington’s Disease 2 years ago. It’s a rare disease that destroys nerve cells in the brain, which can slow down someone’s thinking skills, and make it...
Jessica Kath has no pulse. But the 21-year old is full of heart, as her doctors have witnessed. “It’s been incredible watching her be a survivor,” says UT Southwestern cardiologist Mark Drazner. “Her story is amazing.” At birth, Jessica was diagnosed with a rare disease called Diamond-Blackfan Anemia. She doesn’t...