Farzana Nisha was about to lose her patience. She could not wait for the three-hour heart operation to end so she could see her two-year-old son. Fear overcame her after three hours and there seemed to be no end in sight to the surgery. Her son Rishab Prakash had a...
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Chloe Bush is an adorable two year old that I visit and read to through a non-profit here in town called Circle of Hope. She has a terminal disease that is the #1 genetic killer of children under two. Chloe has surpassed that scary birthday but is still terribly ill...
WATERTOWN, N.Y. (WWNY) – She may be small, but she sure is mighty! Madyson Siddall, from Watertown, is about to turn ten. She loves pranks, dogs, and stuffed animals. But Madyson has had a tough year. In February 2020, her legs began hurting, and she was feeling tired all the...
DETROIT, Mich. – A team of researchers from Wayne State University was awarded a $1.4 million, three-year grant from the U.S. Department of Defense for the study, “Cytochrome c acetylation drives prostate cancer aggressiveness and Warburg effect.” The study, led by Maik Hüttemann, Ph.D., professor of molecular medicine and genetics,...
DETROIT, Mich. – Investigators from the C.S. Mott Center for Human Growth and Development at the Wayne State University School of Medicine reported today in a publication in Cancer Immunology Research the characterization of a novel therapeutic approach capable of restoring immune surveillance and providing long-term protection against ovarian cancer...
As the mom of a 16-year-old daughter with a rare disease, I’ve had to learn how to accommodate Grace’s limitations. Many daily activities became much harder after she was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). My goal is to make her life with LEMS as easy as possible, so I began researching how...
It was a landmark day they never expected to celebrate. Tristan Hall’s family were told he would not reach his first birthday – so they were delighted when he not only surpassed that but is now the proud owner of his first tooth. The brave tot celebrated his birthday in...
New York, NY – Weill Cornell Medicine researchers and the TB Drug Accelerator have received two grants totaling $6.8 million from the Bill & Melinda Gates Foundation to study tuberculosis (TB) drug development. This effort will expediate finding new drug targets within the bacteria and identifying new lead compounds, two...
CHENGDU, China — Kicking off the New Year with remarkable achievements, Chengdu-based WestGene made a significant impact at the 3rd mRNA-Based Therapeutics Summit in Berlin, Germany. Renowned for her pivotal role in mRNA research, Dr. Xiangrong Song, co-founder and CEO of WestGene, presented the latest advances in the company’s oncology...
Rare diseases can’t wait. Rather than sit on the sidelines, many patients are taking the initiative to do what they can to accelerate the diagnostic process, improve understanding of their disease and spark research into potential therapies. The 2023 NEXT Report from nonprofit advocacy group, Global Genes, shares stories of...