A Valley boy diagnosed with a rare and fatal childhood disease is now being allowed access to an experimental drug. Denise and Rickey Miller’s 21-month-old son Woodrow has Niemann-Pick Disease Type C. It’s a form of childhood Alzheimer’s that eventually takes away the child’s ability to walk, talk, swallow, and breathe. For...
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Blacksburg, Virginia – A team of Virginia Tech researchers was awarded nearly $2 million from the National Institute of Diabetes and Digestive and Kidney Disease, part of the National Institutes of Health, to explore novel approaches for treating Type 2 diabetes and obesity. Type 2 diabetes affects more than 38.4...
In a touching turn of events, the Vodafone Ghana Foundation has made a profound impact on the life of Oleki Gaduga, a 12-year-old girl from Ada. Oleki was born with Infantile Blount Disease, a rare disorder that causes leg bowing and difficulty walking. Oleki had been suffering from severe pain...
Farzana Nisha was about to lose her patience. She could not wait for the three-hour heart operation to end so she could see her two-year-old son. Fear overcame her after three hours and there seemed to be no end in sight to the surgery. Her son Rishab Prakash had a...
Chloe Bush is an adorable two year old that I visit and read to through a non-profit here in town called Circle of Hope. She has a terminal disease that is the #1 genetic killer of children under two. Chloe has surpassed that scary birthday but is still terribly ill...
WATERTOWN, N.Y. (WWNY) – She may be small, but she sure is mighty! Madyson Siddall, from Watertown, is about to turn ten. She loves pranks, dogs, and stuffed animals. But Madyson has had a tough year. In February 2020, her legs began hurting, and she was feeling tired all the...
DETROIT, Mich. – A team of researchers from Wayne State University was awarded a $1.4 million, three-year grant from the U.S. Department of Defense for the study, “Cytochrome c acetylation drives prostate cancer aggressiveness and Warburg effect.” The study, led by Maik Hüttemann, Ph.D., professor of molecular medicine and genetics,...
DETROIT, Mich. – Investigators from the C.S. Mott Center for Human Growth and Development at the Wayne State University School of Medicine reported today in a publication in Cancer Immunology Research the characterization of a novel therapeutic approach capable of restoring immune surveillance and providing long-term protection against ovarian cancer...
As the mom of a 16-year-old daughter with a rare disease, I’ve had to learn how to accommodate Grace’s limitations. Many daily activities became much harder after she was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS). My goal is to make her life with LEMS as easy as possible, so I began researching how...
It was a landmark day they never expected to celebrate. Tristan Hall’s family were told he would not reach his first birthday – so they were delighted when he not only surpassed that but is now the proud owner of his first tooth. The brave tot celebrated his birthday in...