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MAKANDA – Blue Sky Vineyard will have food, music and auctions to raise awareness and funds for Tay-Sachs, a genetic neurological disease, from 10 a.m. to 7 p.m. Saturday. This will be the fourth year the winery will host the Tay-Sachs Benefit Concert in honor of 4-year-old Elise Rochman. To...
Little Evan Garcia slept soundly in his mother’s arms on Monday as his parents were introduced to the Aurora city employee whose anonymous bone marrow donation in 2007 saved his life. The Garcia family traveled from their Jasper, Texas, home this week to thank Mary Garza and help promote a...
GRAND RAPIDS, Mich. – Six-year-old Jacob Geer takes 12 pills every day to control his seizures, is fed by a tube and regularly visits a variety of doctors. He will be lucky to celebrate his 12th birthday. One year ago, Jacob was diagnosed with Batten disease, a genetic disorder of...
A brave baby who recently had both kidneys removed was left fighting for life after developing a serious chest infection. Twenty-month-old Ella Chadwick underwent the radical surgery in April as her only hope of survival against the rare Congenital Nephrotic Syndrome, a potentially fatal disorder that affects one in 10,000...
Alfred Santiago the third needs your help. The 2-year-old was born with a rare congenital disorder where a part of his brain is shrinking over time. His father, Alfred Santiago Jr., who works and lives part-time in the Bronx, has found a California doctor who will perform a stem-cell surgery...
BROOKLYN, Mich.  – Full of life and full of love. That’s who four year-old Jaxon Meschke is. “All my friends! I love mom. I love dad and baby brother,” said four-year old Jaxon. But it’s his perseverance that stands out to his parents Brian and Chelsea Meschke most. “He really...
EATONS HILL — An Eatons Hill family knows the daily battles of managing life with cystic fibrosis. Alison and Ben Perkin are the proud parents of four children, two of whom have cystic fibrosis (CF), the most common incurable genetic condition that substantially shortens life expectancy. Mrs Perkin said her...