BETHESDA, Md. – Today, the Cystic Fibrosis Foundation announced three new research awards as part of its Path to a Cure initiative to accelerate the development of treatments for the underlying cause of cystic fibrosis for every person with the disease. The latest round of funding includes up to $2.6 million to...
people News
Charity cyclist Mark Lownes is riding almost 150 miles to raise awareness of a rare disease in memory of his “lovely” sister. The Ackworth man will lead a team of eight people on the coast-to-coast route from Cumbria to Sunderland in a bid to boost the coffers of charities which...
Smoky Mountain Harley-Davidson, in conjunction with the Dixie Iron Riders, is hosting the Cruise for 22q Charity Ride on Aug. 1 to benefit the 22q13 Deletion Foundation, which supports families affected by the Phelan-McDermid syndrome. Phelan-McDermid syndrome, also known as 22q13 Deletion syndrome, is a rare genetic anomaly caused by...
A little boy from Cheam has been diagnosed with a condition so rare that, since its discovery in 1965, fewer than 25 cases have been recorded worldwide. Alfie Mumford, four, suffers from the complex Gillespie syndrome, characterised by partial aniridia, meaning that part of his iris is missing and his...
A Chennai hospital has done for six-month-old Tanisha, born with an “ineffective and underdeveloped” right lung and a “very large vessel” supplying blood to it, what hospitals in her hometown Calcutta could not — give her a new lease of life. One in a lakh babies suffers from the defect,...
CARLTON, Mercer County — Kyle Bennett is a 4-year-old, and he looks and behaves as such. It’s all shy smiles at first, then he opens up to show you what he’s into — kid stuff like his puppy, fishing with Dad, games, Scooby Doo … and more Scooby Doo. Kyle...
Tang Dafeng began livestreaming on Douyin, the Chinese version of TikTok, at 10 pm, saying hello to the audience and introducing the story of her 3-year-old daughter, who two years ago was diagnosed with Rett syndrome, a rare disease that many people have never heard of. On Douyin, many mothers...
SEATTLE – Chinook Therapeutics, Inc. (Nasdaq: KDNY), a clinical-stage biopharmaceutical company focused on the discovery, development and commercialization of precision medicines for kidney diseases, today announced that Tom Frohlich, chief business officer, has been promoted to chief operating officer (COO) of Chinook and Andrew King, D.V.M, Ph.D., head of renal discovery and translational...
A testicular cancer survivor from Beverley has organised a charity fun run to raise awareness of the condition. Chris Robson, 28, of Butt Lane, was diagnosed with testicular cancer in June last year and had surgery to remove a testicle before undergoing chemotherapy. He has now been given the all-clear...
Cleveland, Ohio – Cleveland Clinic and the University of Western Ontario have been awarded a $4.9 million grant from Helmsley Charitable Trust to build a consortium to develop clinical trial outcome tools for patients with Crohn’s disease and permanent ileostomy. A permanent ileostomy is a surgical procedure to divert stool...