Focus on Fabry is a resource for patients, families and healthcare professionals with an interest in Fabry disease, designed by Shire
Networks
Die Fördergesellschaft hat es sich zur Aufgabe gemacht, nationale und internationale Projekte der Früherkennung und der wissenschaftlichen, experimentellen und klinischen Forschung auf dem Gebiet der Neuroblastom-Erkrankung zu fördern und zu unterstützen bzw. ins Leben zu rufen.
The urgent mission of the Foundation Fighting Blindness, Inc. is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.
Their vision is to reach every affected person, their family, and all related medical professionals through our comprehensive array of resources, including a support network, publications, and a website housing a vast library of resources. Their goal is to provide trustworthy and compassionate support, reliable information, and useful resources throughout...
The Foundation for Prader-Willi Research (federal tax id 31-1763110) is a nonprofit corporation with federal tax exempt status as a public charity under section 501(c)(3). 5455 Wilshire Blvd, Suite 2020 Los Angeles, CA 90036 Toll-free: 888-322-5487 Telephone: 760-536-3027 Fax: 888-559-4105 E-mail: http://www.fpwr.org/contact Website: http://www.fpwr.org/
The Foundation to Eradicate Duchenne was established by Dana and Joel Wood of Alexandria, Virginia. Their son James Wood, now six, was diagnosed in May 2000 with Duchenne Muscular Dystrophy. The Woods are both lobbyists in Washington, D.C., and have devoted much of their time and energies to this cause,...
The Foundation Fighting Blindness was founded in 1971 by Gordon and Lulie Gund, Bernard and Beverly Berman, and other dedicated leaders to find cures for retinal diseases at a time when very little was known about those vision-robbing diseases. Over the past 43 years, the Foundation has raised nearly $700...
A book describing in detail about fragile X-associated tremor/ataxia syndrome (FXTAS)
Along with funding research, FRAXA runs scientific meetings, advises pharmaceutical companies large and small, and provides education on college campuses, community settings, and international conferences. Families can reach out to FRAXA for resources, guidance, referrals, and an international community of support. Fragile X research is drastically underfunded, considering its high prevalence,...
The Friedreich’s Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedrech’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between...