Immune thrombocytopenia (THROM-bo-si-toe-PE-ne-ah), or ITP, is a bleeding disorder. In ITP, the blood doesn’t clot as it should. This is due to a low number of blood cell fragments called platelets (PLATE-lets) or thrombocytes (THROM-bo-sites).
Networks
Some people fully recover from thrombotic thrombocytopenic purpura (TTP). However, relapses (flareups) can occur in many people who have acquired and inherited TTP.
A Fabry disease’s community website by Genzyme
Fabry Support & Information Group (FSIG) is a 501(c)(3) nonprofit organization. Our mission is to raise awareness of Fabry disease and its symptoms. The FSIG website provides mutual self-help by linking patients and family members/caregivers. In this way they can support and encourage one another. An increased understanding of Fabry...
The familial amyloid neuropathies are a rare group of autosomal dominant diseases wherein the autonomic nervous system and/or other nerves are compromised by protein aggregation and/or amyloid fibril formation.
“In every conceivable manner, the family is link to our past, bridge to our future.” -Alex Haley The above quote perfectly encapsulates where we come from and what we hope to be for the 22q community. Our link to the past is our connection to The Dempster Family Foundation. Prior...
FamilyConnect is a web site created by AFB (American Foundation for the Blind(R)) and NAPVI (National Association for Parents of Children with Visual Impairments) to give parents of visually impaired or blind children a place to support each other, share stories and concerns, and find resources on raising their children...
Our Mission: To find effective treatments and a cure for Fanconi anemia and to provide education and support services to affected families worldwide.
Fanconi Canada is a registered charity that funds research in Canada into an effective treatment and, ultimately, a cure for Fanconi anemia and serves as a support network for affected Canadian families.