UK Fanconi Anaemia Patient Organisation and Clinical Network
Networks
The FAP Gene Website was started in 2004 by Mick Mason in Melton Mowbray Leicestershire when he realised there was a need for information on FAP. This information was to be from sources which were reliable, non-medical, up to date and easily understood by patients.
Fatty Oxidation Disorders (FOD) Family Support Group connect and network with FOD Families and Professionals around the world and to provide emotional and grief support, Family Stories, practical information about living with these disorders, and Medical Updates to inform families of new developments in screening, diagnosis, research and treatment.
The Fetal Care Center of Cincinnati provides excellent, comprehensive maternal fetal health services for high-risk pregnancy patients — renowned physicians, comprehensive services, advanced technologies and comforting support — all in a single, family-oriented center. The Center offers a complete range of services, from prenatal diagnosis through fetal interventions, including open...
No parent should ever have to accept that there is no hope to save their child’s life. Having battled TTTS, we experienced firsthand the power of hope. Twin to Twin Transfusion Syndrome (TTTS) should have taken our daughters’ lives, but after our frantic search for information and resources, fetal surgery...
LivingWithFibro.org is a dedicated patient-to-patient support community for families affected by Fibromyalgia. LivingWithFibro.org is run by volunteer moderators who have been affected with Fibromyalgia. There are a lot of stories and videos available. Most of members are from US.
The association is run by volunteers, most of whom have fibromyalgia. Our main aims are: • To make people aware of fibromyalgia and its affects: to the public at large and to the health professionals that are responsible for diagnosing and treating people with the condition. • To support people...
Their mission is to raise our voice to empower and activate a community of patients, fighters and champions to push for better policies and to support research, education and awareness for all those touched by this disease.
FIRST – Foundation for Ichthyosis & Related Skin Types