We invite you to the 2nd Orphan Drugs Research & Commercialization Conference happening February 20-21 2014 in San Diego CA. This meeting provides a forum for all stakeholders from researchers industry leaders patient advocacy organizations and regulatory experts to gather and share different perspectives on how to best guide the...
Events
The ICORD 2013 conference is a global open forum for all stakeholders who share the mission and vision to improve the lives and welfare of patients and families with rare diseases through better knowledge, research, care, information, education and awareness. We invite health care, research, academia, industry, regulatory authorities, health...
We are very pleased to welcome you to the website of the First International Primary Immunodeficiencies Congress (IPIC) organised by the International Patient Organisation for Primary Immunodeficiencies (IPOPI).The congress will be held in Estoril, Portugal on 7-8 November 2013. This website is your reference tool to find out all relevant...
SMi are pleased to announce its second annual Orphan Drugs & Rare Diseases conference due to meet on the 14 & 15 October 2013, in London. Recent years have been a time of huge growth in orphan drug development, but also a time of increased pressure as many leading blockbuster...
Bethesda, MD. – WHAT: Thirty years after the adoption of the Orphan Drug Act, patients with rare diseases still face incredible obstacles. At the U.S. Conference on Rare Diseases and Orphan Products, with its theme of “The New Era in Health Care,” patients and patient advocates will discuss: Getting an...
NOVATO, Calif. – Raptor Pharmaceutical Corp., announced management will present at the Leerink Swann Rare Disease Roundtable in New York on October 2, 2013 at 8:40 a.m. EDT/5:40 a.m. PDT. A live audio webcast and archive of the presentation will be available on the company website at www.raptorpharma.com. About Raptor...
This year’s National Conference and Annual General Meeting (AGM) will be held on Saturday 12 October at the East Midlands Conference Centre. Delegates attending previous conferences have consistently asked that there be information and support for a wider number of neuromuscular conditions. So this year, as well as the opportunity...
This conference aims to reignite interest in determining the etiology of ICL, understanding the immunologic mechanisms that distinguish ICL from the CD4 Lymphocytopenia seen in other conditions such as HIV/AIDS or chemotherapy, and investigating potential treatments for ICL.
This date has been coordinated with the DEBRA International Congress (Rome, Sept 20-23) and the World Congress of Pediatric Dermatology (Madrid, Sept 25-27). After the 2012 Conference several work packages have been initiated, and the results will be presented and discussed at the conference: EB Register Professionals Training and Education...
World Orphan Drug Congress 2013 is a proven conference and exhibition bringing together buyers, sellers and key influencers from across the orphan and rare disease industry. Having welcomed over 1000 orphan and rare disease stakeholders in only its 3 year history, the event in Europe’s logical choice for Biotech and...
Finding out that you or a loved one has atypical hemolytic uremic syndrome (aHUS) can be difficult. But you are not alone. In fact, sharing experiences with other patients and families affected by aHUS can help decrease isolation and provide valuable information and support. Meet other families affected by aHUS...
Finding out that you or a loved one has atypical hemolytic uremic syndrome (aHUS) can be difficult. But you are not alone. In fact, sharing experiences with other patients and families affected by aHUS can help decrease isolation and provide valuable information and support. Meet other families affected by aHUS...
ANNAPOLIS, Md. – The first ever International Plasma Awareness Week (IPAW) will be celebrated October 13-20. A joint initiative of the Plasma Protein Therapeutics Association (PPTA) and its member companies, IPAW is designed to: Raise global awareness about source plasma collection Recognize the contributions of plasma donors in saving and...
The 18th annual PanAmerican Society for Pigment Cell Research meeting will be held in the Fluno Center in Madison, Wisconsin and hosted by the University of Wisconsin-Madison Department of Dermatology with support of the University of Wisconsin Comprehensive Cancer Center. The Scientific Program The meeting will be held Sunday, September...
In 2013 Copenhagen is hosting Orphan Drugs Summit for the third time and it offers you again the unique opportunity to meet and interact with all major stakeholders. Orphan Drugs Summit is not only the leading rare disease event in Northern Europe but also a well-established platform where small and...
This meeting is designed to help train new physicians to take care of patients with disorders of the body’s biochemistry, and the meeting helps to increase the far too few numbers of such specialists in the country and abroad. http://www.simd.org
European Multidiscipary Initiative on Neuroacanthocytosis is proud to present a meeting focused on Neuroacanthocytosis syndromes that is open to the public including leading experts in Neuroacanthocytosis: Adrian Danek, Neuroacanthocytosis syndromes from a clinical point of view Thomas Klopstock, Neurodegeneration with brain iron accumulation Andreas Hermann, Clinical science and translational research...
GTC is proud to present the 6th Immunotherapeutics & Immunomonitoring Conference to be held on January 29-31, 2014 in San Diego, CA. The immune system plays a central role not only in fighting infections, but also in many other diseases and medical conditions including cancer. The study of the immune system has led to significant...
Event Overview The 5th annual Stem Cells & Regenerative Medicine Congress is where biotechs gather to explore the most promising trends in stem cell, cell and gene therapies. Hear from cell therapy companies you’ve not heard from before, and get to know the top 20 next-to-launch biotechs. This is your...
The 2nd Annual Strengthening Patient Advocacy Relations across the Life Science Industry Conference will take place in Chicago, Illinois on July 30-21, 2013. Central to this program will be vast knowledge share surrounding the identification of the most logical home for the patient advocacy function within an organization. Communication strategies...