Brief Title
Perception Prognosis, Goals of Treatment, and Communication
Official Title
Pilot Study to Investigate Advanced Cancer Patient's Perspective of Their Prognosis, Goals of Treatment, and Quality of Communication With Their Oncologists
Brief Summary
The purpose of this research study is to assess what the participant understands about their illness, prognosis, the goals of the cancer treatment and their communication with their oncology providers. This study will help us to figure out how the investigators can improve how other patients understand their illness and goals of treatment and help us improve communication with their doctors. This research is being done because there is not a lot of information on how much patients understand about their illness and prognosis.
Detailed Description
- Participants will be asked to answer a few basic questions regarding race, ethnicity, religion, relationship status, education, income, and living situation. - They will then be asked to complete a questionnaire which contains questions about their mood, spirituality, quality of life and their understanding of their treatment and prognosis and their communication with their oncologist. They will complete these questionnaires in the clinic or infusion room on one of their regularly scheduled visit.
Study Type
Observational
Primary Outcome
Completion of surveys
Secondary Outcome
Patients perceptions of prognosis, goals of care, and communication with providers
Condition
Gastric Cancer
Publications
* Includes publications given by the data provider as well as publications identified by National Clinical Trials Identifier (NCT ID) in Medline.
Recruitment Information
Estimated Enrollment
50
Start Date
October 2010
Completion Date
June 2014
Primary Completion Date
October 2012
Eligibility Criteria
Inclusion Criteria: - Confirmed new diagnosis of advanced gastric, esophageal, pancreatic, and hepatobiliary cancer, not being treated with curative intent. - Planning to receive chemotherapy at Massachusetts General Hospital - Ability to read and respond to questions in English. Exclusion Criteria: - Prior chemotherapy for current stage of disease.
Gender
All
Ages
18 Years - N/A
Accepts Healthy Volunteers
No
Contacts
Jennifer Temel, MD, ,
Location Countries
United States
Location Countries
United States
Administrative Informations
NCT ID
NCT01401894
Organization ID
10-219
Responsible Party
Principal Investigator
Study Sponsor
Massachusetts General Hospital
Study Sponsor
Jennifer Temel, MD, Principal Investigator, Massachusetts General Hospital
Verification Date
January 2017