ROHHAD syndrome is a rare disease that affects the autonomic nervous system (the part of the nervous system that controls involuntary actions) and the endocrine system. As the name suggests, the most characteristic features include dramatic weight gain over a six- to 12-month period in the first 10 years of life followed by hypothalamic dysfunction, dysregulation of the autonomic nervous system, and alveolar hypoventilation.
Denika and her family spent much of this past year at the Janeway. With a very rare condition called Rohhad.Net Denika requires constant care to help manage her illness. Produced compliments of CBC Television.