Marfan Syndrome

This video focuses on recognising the signs and symptoms of Marfan syndrome, including recognising/suspecting an aortic dissection in an emergency situation and best treatment practices.

A combination of audio and visual production techniques have been used from interviews with Marfan experts, visual diagrams and interviews with actual individuals and families affected by real life experiences (a family touched by a tragic outcome and a lifesaving outcome).

We are very grateful for Bruno Caruso and the Edwards family for sharing their very personal stories with the community. Bruno was one of the founding and original members of the Association who survived a dissection, while many members of the Edwards family currently serve on the committee. Both of these stories will be used in a positive manner to save the lives of others affected by Marfan syndrome.