Alexander disease is a progressive and fatal neurodegenerative disease. It is a rare genetic disorder and mostly affects infants and children, causing developmental delay and changes in physical characteristics. It is a type of leukodystrophy characterized by the destruction of the myelin sheath (the fatty covering that acts as an insulator around nerve fiber) and abnormal protein deposits known as Rosenthal fibers. Most cases of Alexander disease begin before age 2 years (the infantile form).
Justin has a rare genetic disorder called Alexander Disease. Doctors have given his mother a grim prognosis all his life–telling her he would be dead by age 4, 8 and 10. He’s still living.
Alexander’s Disease is a leukodystrophy affecting the myelin sheath surrounding nerve cells. It is a neurodegenerative disorder typically fatal and has no cure.
His mother, Sary, wants to provide him with the best quality of life possible in spite of the disease. Adult stem cell therapy offers that chance.
Find his patient experience here: