FRANKFURT, Germany – Wanderlust and climate change mean that viruses transmitted by mosquitoes are increasingly spreading across Europe. The class of flaviviruses, which comprises the dengue, Zika, West Nile and yellow fever viruses, cause serious neurological diseases for which only insufficiently effective vaccines and no specific treatment options currently exist....
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NEW YORK – Intercept Pharmaceuticals, Inc. (Nasdaq:ICPT), a biopharmaceutical company focused on the development and commercialization of novel therapeutics to treat progressive non-viral liver diseases, today announced the appointment of M. Michelle Berrey, M.D., M.P.H., as President of Research & Development and Chief Medical Officer. “Dr. Berrey brings a wealth of leadership...
RENO, Nev. — The International Bladder Cancer Group (IBCG) and UroToday, a leading global resource for urology news and education, are proud to announce our formal partnership to collaborate on improving patient outreach and education on bladder cancer. This partnership will leverage the strengths of both organizations to provide patients...
BRUSSELS, Belgium — The International Diabetes Federation (IDF), in collaboration with Sanofi’s Global Health Unit (GHU), is taking significant steps to improve access to diabetes care. The collaboration aims to support the early diagnosis, management and prevention of diabetes and its complications by training a minimum of 4,000 healthcare professionals...
Cincinnati, OH – The International Rett Syndrome Foundation (IRSF) celebrated its 25th annual family education and information conference in Leesburg, VA this Memorial Day weekend entitled “Celebrating the Torch Within”. Over 250 families and dozens of clinicians and researchers from across the United States participated in this annual event which...
Amanda Hamacher was in grade school when she began to lose her sight and hearing as a result of a rare genetic disorder called Alstrom syndrome. Now, the 21-year-old cannot see and has severe hearing loss. Yet, she enjoys a newfound sense of freedom thanks to a program sponsored by...
Hello everyone! My name is Claire Bevec and I’m so excited to announce my monthly column that I will be writing for Harmony 4 Hope. I am so thankful for this opportunity to share some of the most beautiful stories about life with a rare disease. Each month I will...
DURHAM, N.C. – Istari Oncology, Inc., a clinical-stage biotechnology company today announced that Jamie Iudica has joined as Chief Manufacturing Officer (CMO). Iudica brings more than 25 years of experience in the pharmaceutical industry to Istari, including leadership roles in engineering, manufacturing, and supply chain operations. His extensive expertise in...
ORLANDO, Florida — Until Susan Caldwell of Waxahachie, Texas, learned in 2016 that her 8-year-old son Ryan Michael had Duchenne muscular dystrophy (DMD), she had never heard of the disease—and only vaguely knew of muscular dystrophy, thanks to the Jerry Lewis Telethon. “It was devastating,” she recalled. “I had met...
LAKE FOREST, Ill. – Jaguar Gene Therapy, a company accelerating breakthroughs in gene therapy for patients suffering from severe genetic diseases, today announced the appointment of Joseph W. McIntosh, M.D., as Chief Medical Officer. Dr. McIntosh joins Jaguar with more than 16 years of drug development experience in the biopharmaceutical industry,...