When little Callum Miles was born with a rare genetic disorder, his parents were told he would probably have to go to a special needs school. But two years after his mum and dad fought to get him into nursery, the four-year-old is now looking forward to starting at a...
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Parker Pennington won’t be at the June 27 Skate for Life exhibition showcasing his jumping skills or performing the routine that had him sitting in third place after the short program at the U.S. Figure Skating Championships in Cleveland earlier this year. He will, however, host the charity event for...
When the daughter of Hyderabad resident Rahul Vipparathi was diagnosed with Tuberous Sclerosis Complex (TSC), a rare genetic disorder causing the growth of numerous benign tumours, it felt like his entire world had come crashing down. As a parent, one is expected to be the anchor during a storm, but...
CAMBRIDGE, Mass. — PatientsLikeMe, the first community-based personalized medicine platform for people with life-changing conditions, and 23andMe, the world’s leading personal genomics company, announce a partnership today to help people with Parkinson’s disease. PatientsLikeMe is teaming with 23andMe on its effort to recruit 10,000 people with Parkinson’s for a massive...
Los Angeles, Calif. – The Pediatric Cancer Research Foundation today announced a call for entries for its 2024 Cancer Survivor Scholarships. The Foundation will award $100,000 to eligible students – including graduating high school seniors, college, vocational and graduate students – to support these students in realizing happy, productive futures....
A University of Pennsylvania doctor who found a treatment for his own deadly disease is now on a mission to help more people living with rare diseases.
LEIDEN, The Netherlands – Pharming Group N.V. (“Pharming” or “the Company”) (Euronext Amsterdam: PHARM/Nasdaq: PHAR) announces the appointment of Anurag Relan as Chief Medical Officer (CMO), effective immediately, and Robert Friesen as Chief Scientific Officer, effective from 1 August 2021. Anurag and Robert will be the successors of Bruno Giannetti, who was Chief Operating Officer (2006 – 2019)...
LEIDEN, Netherlands – Pharming Group N.V. (“Pharming” or “the Company”) (Euronext Amsterdam: PHARM) (Nasdaq: PHAR) announces the intention to nominate Steven Baert, Leon Kruimer and Jabine van der Meijs as Non-Executive Directors to the Board. Their official appointments will be confirmed by the Company’s Annual General Meeting of Shareholders that will be held on 19...
MARLBOROUGH, Mass. — Phio Pharmaceuticals Corp. (Nasdaq: PHIO), a clinical stage biotechnology company whose proprietary INTASYL™ siRNA gene silencing technology is designed to make immune cells more effective in killing tumor cells, today announced that new preclinical data demonstrating the potential of INTASYL self-delivering siRNA targeting Cbl-b improves natural killer...
CORINTH — A local photographer and a family shattered by illness crossed paths Saturday to create lasting memories of 4-year-old Kaitlin Bowman. Photographer Tracey Buyce selected the Bowman family — Kaitlin and her parents, Becky and Jason — as winners of her version of a national photography contest called “Giving...