NORD is excited to be hosting a series of in-person and virtual community listening sessions exclusively for Latino/a/x people affected by rare diseases in the United States. We invite you to help spread the word about this important opportunity by sharing this programming across your network and encouraging participation amongst...
people News
Utrecht, The Netherlands and Philadelphia — LAVA Therapeutics N.V. (Nasdaq: LVTX), a clinical-stage immuno-oncology company focused on developing its proprietary Gammabody™ platform of bispecific gamma-delta T cell engagers, announced the appointment of Christy J. Oliger to its board of directors effective March 9, 2023. Ms. Oliger brings extensive commercial, portfolio...
CAMBRIDGE, Mass. – Tessera Therapeutics, a biotechnology company pioneering a new approach in genetic medicine known as Gene Writing, announced today the appointment of Howard Liang, Ph.D., as President and Chief Financial Officer. The company also expanded its executive bench with newly promoted talent and hires: Madhusudan Peshwa, Ph.D., as Chief Technology Officer for...
Leena Bruckner-Tuderman from the Department of Dermatology at the University Medical Centre in Freiburg has just been awarded the Eva Luise Köhler Research Prize for Rare Diseases. She has not only made a decisive contribution to the clarification of the molecular causes of the skin disease “dystrophic epidermolysis bullosa”, but...
Klosterneuburg, Austria – At school, he was inspired by Schrödinger´s book ‘What is Life?’. Now, several decades later, Leonid Sazanov is awarded the Erwin Schrödinger Prize by the Austrian Academy of Sciences (ÖAW). The scientist heads a research group at the Institute of Science and Technology Austria (ISTA) and was...
Wayne, N.J.— Life Raft Group (LRG), the pre-eminent patient-based organization dedicated to finding a cure for a deadly cancer called gastrointestinal stromal tumors (GIST), today announced the launch of the GIST Collaborative Tissue Bank, a partnership between twelve internationally-renowned GIST researchers and the Life Raft Group, whose Patient Registry houses...
FOOTBALL– The Leyden Lions suffered what could be looked at as a devastating 34-10 preseason loss at home to the Racine Raiders on Saturday, but the plight of a little 12-year-old girl puts back into perspective what’s really important to the players, coaches and the community. And thoughts about the...
Padma Panniker considers herself lucky. Although she suffers from blurry vision and chronic pain, she can still move, and even drives herself around; something unusual when compared with many multiple sclerosis (MS) sufferers. “Some of them are wheelchair-bound and even lose the ability to speak because of the illness,” she...
Taking care of a newborn is no easy feat. From feeding to changing, a baby requires all of one’s attention. Now imagine if the feeding and changing were the easy part. What if when you touched your baby ever-so-slightly, you risked damaging him or her for life? That is precisely...
Everyone in this world has needs but not all people have the same needs. Tabia McKinzie wants to raise awareness for people who have what most would call “special needs.” This has been brought to the forefront for McKinzie because of her daughter, Nandi. Nandi has Turner syndrome, a rare...