Margaret Flynn is still waiting for a lung transplant. Now, the Ladysmith resident has been on the current waiting list longer than anyone else. “It’s a rare match,” said Flynn, who has O negative blood as well as certain anti bodies in the blood, making her difficult to match to...
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A 31-year-old man from Bratton has organised his first event as part of a five-year campaign to help a specialist school raise £2.4m for a hydro swimming pool and early learning centre. Radek Evans, 31, from Carpenters Lane,who has previously raised money for Hope Nature Centre in Southwick, and Dorothy...
Chicago — The Foundation for Sarcoidosis Research (FSR) is proud to launch the Stand Up for Sarc Campaign this April as part of National Sarcoidosis Awareness Month. Sarcoidosis (pronounced SAR-COY-DOE-SIS) is considered a rare, inflammatory disease characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs...
CHICAGO, Ill. — The Foundation for Sarcoidosis Research (FSR) is honored to host its inaugural in-person training of FSR-GSCA Volunteer Patient Leaders from around the United States at Cleveland Clinic, the FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) Founding Member. This inaugural in-person training of FSR-GSCA Volunteer Patient Leaders has been...
MISSOULA — The American Red Cross is facing a severe blood shortage, so they’re asking you to donate if you can. On Wednesday, a blood drive took place to honor a boy whose life was saved, thanks to generous blood donors. Troy Ross was just 3-years old when he was...
FRAMINGHAM — Before he reached puberty, Dick Wyman suffered about 20 broken bones. His daughter, Christine Wyman Rossi, fractured her femur while in her mother’s womb, followed by about 20 more fractures while in her childhood. Wyman’s grandson, Jack, broke two legs when only 4 weeks old. The Wyman family...
TEMPE, Ariz. — Nearly four dozen members of the ASU fraternity, Phi Gamma Delta (FIJI), plan to shave their heads Sunday in support of the Center for Rare Childhood Disorders (the Center) at the Translational Genomics Research Institute (TGen), an affiliate of City of Hope. The “Shave to Save” fundraiser was...
LAKE ZURICH, Ill. & BETHESDA, Md. – Fresenius Kabi and AABB announced that today begins the celebration of the 16th annual Blood Collectors Week (Sunday, September 5 through Saturday, September 11, 2021). This annual event recognizes and honors the hard work and lifesaving contributions of blood collectors, the professionals who...
There isn’t a mountain high enough to stand in the way of five friends doing their bit to make life better for a severely disabled teenager. Clint Tuckey, Philip Easby and Andy Day from Tillingham, along with Neil Yeaman from Southminster, and Lee Carey from Colchester, are taking on the...
CAMBRIDGE, Mass. — Fulcrum Therapeutics, Inc.® (Nasdaq: FULC), a clinical-stage biopharmaceutical company focused on improving the lives of patients with genetically defined rare diseases, today announced the appointment of Alex C. Sapir as chief executive officer and president, effective July 1st, 2023. Upon assuming his new role, Mr. Sapir will also...