The International Advocates for Glycoprotein Storage Diseases (ISMRD)

ISMRD is a 501(c) (3) not-for-profit organization based in California, USA and is governed by a Board of Directors whose backgrounds span nations, diseases and experience.

Their mission is the leading advocate for families worldwide affected by a Glycoprotein Storage Disease. Through partnerships built with medicine, science and industry, we seek to detect and cure these diseases, and to provide a global network of support and information.

Their vision is to seek a future in which children with Glycoprotein Storage Diseases can be detected early, treated effectively, and go on to live long, healthy and productive lives.