The mission of this foundation is to save the lives and support the families of children and adults who are genetically predisposed to sudden death due to heart rhythm abnormalities.
The patient and family support program provides access to information, resources, research and support to patients' and families' who are dealing with genetic conditions that cause sudden cardiac death in the young or who have lost a loved one to sudden unexplained death. By providing this service, families receive information that helps them to make informed decisions. This program also provides a support network for the families through the Foundation and with other families throughout the United States. SADS receives a large number of e-mails and calls on the hotline from parents, families and friends who have questions. The staff provides assistance and compassion to those who have experienced a death, and connects them to physician and family referrals. SADS maintains a database of families nationwide and connects families with similar circumstances with each other to foster support in living daily with the effects of the Long QT Syndrome. Also, SADS provides information, suggestions, and guidance in helping families and friends forge supportive networking relationships.