The Genetic Disease Foundation (GDF) is a non-profit 501c(3) organization established in 1997 by patients and families affected by genetic disorders. The Foundation’s mission is to support research, education and the prevention of genetic diseases. The GDF supports Education programs for the public and physicians to increase their awareness about...
Networks
The Gluten Intolerance Group®, also known as GIG®, is a 501(c)(3) non-profit organization funded by private donations including the Combined Federal Campaign, United Way Designated Giving, Employer Matching Funds; proceeds from memberships, the sale of products and our educational resources. We rely on your contributions, which are tax deductible. 85%...
The Guthy-Jackson Charitable Foundation is dedicated to funding basic science research to find answers that will lead to the prevention, clinical treatment programs and a potential cure for Neuromyelitis Optica (NMO) Spectrum Disease.
The Gwendolyn Strong Foundation (theGSF) is a nonprofit organization dedicated to increasing global awareness of Spinal Muscular Atrophy (SMA), the #1 genetic killer of young children, accelerating research focused on ending this cruel disease, and supporting families impacted by SMA and other life-altering conditions. theGSF is an all volunteer organization,...
The primary mission of the Hailey-Hailey Disease Society is the dissemination of correct and useful information and support for Hailey-Hailey Disease (HHD, Chronic Benign Familial Pemphigus) patients and the health care community. We support this website and forum and manage the Yahoo Group, TalkHHD.
The Hidradenitis Suppurativa Trust Unit 6 Fort Horsted Chatham, ME4 6HZ United Kingdom E-mail: [email protected] Website: http://www.hstrust.org/
The Ichthyosis Support Group of the UK
Still’s disease is a rare and often misunderstood disease which strikes both children and adults. Still’s disease is a form of arthritis that is characterized by high spiking fevers and evanescent (transient) salmon-colored rash. Still’s disease was first described in children (SJIA) but it is now known to occur, much less...
ISMRD is a 501(c) (3) not-for-profit organization based in California, USA and is governed by a Board of Directors whose backgrounds span nations, diseases and experience. Their mission is the leading advocate for families worldwide affected by a Glycoprotein Storage Disease. Through partnerships built with medicine, science and industry, we...
Food Protein Induced Enterocolitis Syndrome (FPIES) is an allergic reaction in the gastrointestinal system. The most common triggers are milk and soy, but any food (even those thought to be hypoallergenic e.g. rice, oat) can cause an FPIES reaction. FPIES typically starts within the first year of life.
The International League Against Epilepsy (ILAE) is the world’s preeminent association of physicians and other health professionals working towards a world where no persons’ life is limited by Epilepsy.
The ITP Support Association is an independent UK registered charity which aims to promote and improve the general welfare of people with Immune Thrombocytopenia (formerly known as Idiopathic Thrombocytopenic Purpura) by providing support and information to patients, their families, and health professionals. This website receives no external funding or sponsorship....
The Journey Home – the CEMM Traumatic Brain Injury (TBI) Web Site
This is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals from around the world. It is the world’s first international charity dedicated specifically to the eradication of death and suffering from renal cancers. It is also by far the largest kidney cancer charity,...
The Kidney Foundation of Canada is people working together for a common cause. They are volunteers, individuals living with kidney disease, donors, and staff members — from all walks of life, all across Canada. The Kidney Foundation of Canada exists for the enhancement of kidney health and the reduction and,...
The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services. LLS’s mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. Since the first funding in 1954, LLS...