The story of The Children’s Heart Foundation begins with the joyful life and premature death of Sam Peterson.
Networks
The Cushing’s Support and Research Foundation was established in 1995 to provide information and support to Cushing’s patients and their families.
The Cystinosis Foundation is a non-profit organization with more than 25 years of International experience in supporting and educating families and the medical community through the dissemination of educational literature, funding research, and annual conferences.
The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about Cystinosis. We are a private, nonprofit 501(c)(3) corporation, Federal Tax ID 04-3323789.
Our Mission: To raise awareness of autonomic nervous system dysfunction and to promote dysautonomia education, support and networking. The Dysautonomia Information Network (DINET) is a volunteer run 501(c)(3) nonprofit organization.
The Epidermolysis Bullosa Medical Research Foundation was established in 1991 by Gary & Lynn Fechser Anderson at the request of Dr. Eugene Bauer, then Professor and Chairman of the Department of Dermatology at The Stanford University School of Medicine. His research team was making exciting progress of their study of...
The Fabry Support Group of Australia is a not-for-profit community organisation whose primary aim is to share information about Fabry Disease and available treatment, amongst the Australian Fabry Community.
The Fetal Alert Network is jointly supported by The Hospital for Sick Children and Mount Sinai Hospital. It is funded by the Government of Ontario through the Specialized Paediatric Coordinating Council . The Fetal Alert Network web site aims to assist mothers and their primary health care providers by offering...
The FH Foundation is a patient-centered nonprofit organization dedicated to education, advocacy, and research of Familial Hypercholesterolemia (FH). Our mission is to raise awareness and save lives by increasing the rate of early diagnosis and encouraging proactive treatment. If left untreated, FH leads to aggressive and premature heart disease in...
The Foundation for Peripheral Neuropathy is a Public Charity committed to fostering collaboration among today’s most gifted and dedicated neuroscientists and physicians. These specialists from around the country will help us maintain a comprehensive view of the field and determine the research areas that hold the most promise in neuropathy research and...
The Foundation for Peripheral Neuropathy is a Public Charity committed to fostering collaboration among today’s most gifted and dedicated neuroscientists and physicians. These specialists from around the country will help us maintain a comprehensive view of the field and determine the research areas that hold the most promise in neuropathy research and...
We created the Foundation to Fight H-ABC because there is currently a lack of awareness surrounding H-ABC. It affects our family in a very real way, but we understand that most people have never heard of H-ABC. Just because a disease is rare does not mean it should receive less...