Networks

The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK.
The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK. MPS House Repton Place White Lion Road Amersham Buckinghamshire HP7 9LP United Kingdom Telephone: (+44) 0345 389 9901 E-mail: [email protected]: http://www.mpssociety.co.uk 
The mission of Soft Bones, Inc. is to provide valuable information, education and support for people living with hypophosphatasia (HPP), their families and caregivers. The Foundation promotes research of this rare bone disease through awareness and fund-raising efforts. Soft Bones Inc.  121 Hawkins Place #267 Boonton, NJ 07005 Toll-free: (866) 827-9937 Telephone: +1 (201) 317-1818 E-mail: [email protected]: http://www.softbones.org
The mission of the SMA Foundation is to accelerate the development of a treatment for SMA, the number one genetic killer of infants and toddlers. The SMA Foundation was established in 2003 by Loren Eng and Dinakar Singh, parents of a child with SMA. Today, the SMA Foundation is the...
The Spondylitis Association of America (SAA) is a nonprofit organization founded in 1983 to address the needs of people affected by spondyloarthritis. Since that time, SAA has been at the forefront of the fight to promote medical research, educate both the medical community and general public and advocate on behalf...