Networks

Since 1993, PCF has accelerated discovery for better treatments and ultimately cures for prostate cancer. Learn more about our mission, our leadership, and our investments in progress.
The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome.
Pulmonary Fibrosis Foundation 230 East Ohio Street, Suite 340 Chicago, IL 60611 Toll-free: 888-733-6741 (1-888-PFF-ORG1) Fax: 866-587-9158 E-mail: [email protected]: http://www.pulmonaryfibrosis.org/ 
Our mission is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.
RaptorCares is committed to supporting the cystinosis community. Visit RaptorCares, sign up and receive cystinosis management information, the survey results, and more.
Rare Disease Communities helps patients to understand their condition, connect with other patients and provides tools for living with their disease.
RNE’s mission is to bring together New England patients, families and providers touched by rare and complex disorders. We offer educational opportunities, create awareness of available resources, and build foundations for support to improve patient quality of life. RNE aims to bridge the gap between patients and families, clinics and...