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Complex 5 mitochondrial respiratory chain deficiency Complex 2 mitochondrial respiratory chain deficiency Complex 4 mitochondrial respiratory chain deficiency Complex 3 mitochondrial respiratory chain deficiency Mitochondrial complex I deficiency Angioimmunoblastic T-Cell Lymphoma Kearns-Sayre syndrome Complex 1 mitochondrial respiratory chain deficiency Leigh syndrome Deafness- isolated- due to mitochondrial transmission Alpers syndrome
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MitoAction is a nonprofit organization founded by patients, parents, and Boston hospital healthcare leaders who had a vision of improving quality of life for children and adults with mitochondrial disease. The organization began in 2005 as an idea and has evolved from a small New England support group to a dynamic, active service organization helping thousands of patients and families. Despite the growth of the organization, the mission remains the same: to make a measurable impact in the lives of those who are affected by mitochondrial disease.
MitoAction's mission is to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives.
To do this, MitoAction's goals include:
To improve quality of life for adults and children affected by mitochondrial disease.
To internationally raise awareness about mitochondrial disorders, and their relationship to other diseases.
To provide specific and practical materials that help patients to manage their symptoms
To aggregate and connect the international mitochondrial disease community
To engage pharmaceutical industry working toward therapeutic approaches to mitochondrial disorders.
To create tools which empower patients and caregivers to be advocates for themselves or their children.