In 2013, Grace Wilsey was diagnosed with a rare genetic disorder called NGLY1 Deficiency. Her parents, Matt and Kristen, quickly discovered the incredible challenges they faced. At the time, Grace was one of only six known patients worldwide. Diseases that rare weren't on the radars of big labs or pharmaceutical companies. Funding for research was virtually nonexistent.
The world wasn’t set up to save Grace. So Matt and Kristen did what any good parents would do — they set out to change the world.
And so Grace Science Foundation was born.
We are dedicated to pioneering approaches to scientific exploration that are faster, less expensive and more collaborative. Our advances aren’t just bringing us closer to a cure for NGLY1 Deficiency, they are being used to discover and treat countless other diseases. In this way, our work doesn’t just help the few — it impacts the lives of billions.