Contact for additional information: Dr. Harvey Luksenburg, NHLBI 301-451-6766
Events
Jointly sponsored by the NIH’s Office of Rare Diseases Research (ORDR) and the FDA’s Center for Drug Evaluation and Research, Division of Gastroenterology and Inborn Errors of Metabolism Products (DGIP), the goal of the workshop is to bring together those involved in research and investigational treatments for central nervous system...
Examine the Latest Symptomatic and Disease Modifying Approaches for the Clinical Development of New AD Therapies. Website: www.cbinet.com/alzheimers
On Saturday the 31st of October 2009 we will organise the annual CMTC meeting in the Netherlands and is open for members, their families and doctors from any place. Information
What Every American Needs to Know about Autoimmune Disease – October 24, 2009 in Orlando, FL. This FREE Public Forum will be held at the Harry P. Leu Gardens, 1920 N. Forest Ave, Orlando, Florida, from 9:30 AM to 1:00 PM in the Camellia Room. This FREE conference is open...
Information and Registration
We welcome you to the 3rd Congress of the International Society of Nutrigenetics/Nutrigenomics (ISNN), cosponsored by the Division of Cancer Prevention of the National Cancer Institute; the Center for Genetics, Nutrition and Health in Washington, DC; and several groups within the U.S Department of Health and Human Services and the...
Information and Registration
Information
With the substantial control of infections and nutritional disorders, birth defects have emerged as a major global cause of death and disability. Every year an estimated 7.8 million children are born in the world with a serious genetic or acquired birth defect. Of these 3.3 million die each year. The...
This third Translational Research in Paediatric Rheumatology conference will showcase the growing body of evidence that the regulation of central and peripheral B and T cell development plays a pivotal role in the pathogenesis of autoimmune diseases, highlighting the molecular and cellular mechanisms involved in the activation of the effector...
TREAT-NMD is planning its first international conference in collaboration with the NIH. The aim of the meeting is to share progress in the area of translational medicine in inherited neuromuscular diseases and set the future collaborative agenda. This conference will build on achievements of the NIH and TREAT-NMD. It will...
EPPOSI is pleased to announce that its 10th Workshop on Partnering for Rare Disease Therapy Development will be hosted by the Belgian Federal Parliament on Monday 26 – Tuesday 27 October 2009 in Brussels. The event will be co-chaired by Mr. Yann Le Cam (EURORDIS), Pr. Jean-Jacques Cassiman (ESHG), Dr....
1) Disseminate current knowledge of the standard treatment of hairy cell leukemia (HCL), 2) Identify the evidence (or lack thereof) with which current treatment practices are based, 3) determine needs and opportunities for clinical research to improve HCL treatment, 4) disseminate results of newer diagnostic techniques, including flow cytometry, PCR...
The goals of this workshop are to (1) obtain an update on recent developments in the fields of basic immunology, immune responses to neglected tropical disease (NTD)-causing agents, and pathogenic mechanisms of NTDs; (2) determine what are the knowledge gaps and under-emphasized research areas for certain diseases that may not...
The goals of this conference are to (1) facilitate international discussion and team-building of hematopoietic cell transplant physicians and autoimmune disease experts to work together for treatment of patients with autoimmune diseases, (2) focus on the aspects of HCT therapy that are particularly challenging for autoimmune diseases, (3) identify questions...
The goal of this workshop is to help foster communication and create conditions whereby rationale drug and biologic development programs in the neuromuscular diseases can be more effective. The organizers anticipate a peer-reviewed publication that focuses upon conveying the broader, derivative lessons from the conference.
This workshop will provide an important forum for bringing together NIH researchers from across the Institutes and Centers with representatives from the Food and Drug Administration (FDA) as well as professional societies and patient advocates to explore the potential utility of adaptive designs. Additional Information: Conference Web Site
The overarching goal of the conference will be to provide the NHLBI with specific recommendations for future laboratory and clinical research focuses, for clinical trials needed to advance the standard of care, and for the best mechanisms to continue the work of the Bone Marrow Failure Disease Consortium, a successful...
Workshop participants will identify gaps in knowledge, prioritize basic and clinical research questions, identify existing resources that can be applied to Prader-Willi syndrome (PWS) research, identify needed resources and technologies, establish cross-disciplinary and multidisciplinary collaboration, formulate a framework for advancing PWS research, and provide a published report of a comprehensive...