World Orphan Drug Congress USA is the largest international, commercially-focused event for the advancement of rare disease research and orphan drug development. Register now to network with and hear from biotechs, pharma, patient groups and government agencies improving orphan drug access. register now › download brochure › Comprised of An...
Events
Musculoskeletal Congress Organizing Committee Angela Forsyth, chair – U.S.A. Mauricio Silva, vice-chair – U.S.A. Nicholas Goddard, junior chair – U.K. Neil Frick, NHF – U.S.A. Assad Haffar, WFH programs deputy director – Canada Maria Milagros Salas, WFH congress and meetings...
The first IRDiRC Conference will be held in Dublin, Ireland on 16-17 April 2013 and will be organised by the European Commission during the Irish Presidency of the European Union. The conference aims to gather stakeholders active in the rare disease area from across the globe. In addition to a...
6th Annual Hope For Holt 6th Annual Hearts for Holt Gala Feb 9th, 2013 For more information – click here The images from the “Hope for Holt 2011” event are available to be viewed at the following online gallery: http://briantreffeisen.smugmug.com/Events/Hope-for-Holt-2011 PASSWORD = grier (all lower case) HOLT Wine...
The Day of Hope Family Conference and Natalie’s Wish Celebration will be held at the Balboa Bay Club in Newport Beach, California on Thursday, April 18 through Saturday, April 20, 2013. The conference will focus on the tremendous progress of CRF researchers including Dr. Corinne Antignac, Dr. Stéphanie Cherqui, Dr....
The 5th annual 24 hours of Schweitzer is a team relay for skiers, telemark skiers, and snowboarders beginning on Friday March 22nd 8:30am and ending on Saturday. 3 Intermediate runs will be used over the course of 24 hours. Teams will ski and ride for prizes, bragging rights and most...
How can HTA agencies at national level consider societal benefits as an integral element of their HTA core models which positively contribute not only to realisation of better health outcomes for EU citizens, but also to a smart sustainable economy? Through its research programme on health technology assessment (HTA), Epposi...
WORKSHOP CHAIRS: REGISTER NOW Samir Khleif (Georgia University, USA) Christian Schneider (Danish Health and Medicines Authority) Catherine...
Dear members and friends, we are pleased to invite you to the 4th ICCCPO Meeting of European member groups, which will be held from 24th – 26th May, 2013 in Basel (Switzerland). Peter Lack and the Childhood Cancer Organisation Switzerland welcome us to Basel. The...
The annual joint ECCO – AACR – EORTC – ESMO Workshop on ‘Methods in Clinical Cancer Research’ This intensive workshop represents a unique opportunity for European junior oncologists, in any clinical research specialty area, to learn from experts the essentials of clinical trial design. ‘FLIMS’ is a highly regarded training opportunity for junior paediatric...
PROGRAMME 09.00 Registration, Coffee & Exhibition Chair – Prof Rob Evans –Brunel University, Uxbridge 10.00 Testing for the Caucasian HFE mutation C282Y is not sufficient to identify patients with haemochromatosis Dr Kathryn Robson Weatherall Institute of Molecular Medicine, University of Oxford 10.30 Measurement of liver iron in the management...
HOME Greetings Organization Schedule Call for Abstracts Registration Invitation to the Industry Date 21－23 March, 2013 Venue MIELPARQUE KYOTO 676-13,Higashi-shiokoji-cho,Nanajo-sagaru,Higashi-no-touin- dori,Shimogyo-ku, Kyoto, 600-8216 Japan Phone: +81- +81-(0)75-352-7444 Theme Phenotyping bladder pain based on pathophysiology Organized by Comfortable Urology Network (CUN) International...
Based on the success of and feedback from the recent RARE Patient Advocacy Summit, we have decided to continue the discussion and dialogue around pressing topics related to living with rare disease. As a result, Global Genes | RARE Project and a host of partners will be rolling out a...
The 8th Annual HD Therapeutics Conference will be held April 8-11, 2013, in Venice, Italy. The conference program is currently being finalized and will cover all aspects of drug discovery related to Huntington’s disease. Sessions will include: Advancing systems biology for HD From the beginning: What developmental systems tell us...
CompanyProfileandconferences.com promote a new conference on “2nd Biosimilars Congregation 2013” which discuss on Commercial challenges, opportunities and strategies to develop Biosimilars. 2nd Biosimilars Congregation 2013 To be held on 19th and 20th Feb 2013 at Marriott Hotel , London UK According to Global Industry Analysts Inc. The global...
This workshop will teach you about: Requirements by health care payers for Comparative Effectiveness Evaluations and Real World Data of Health Care Product Impact Comparative Effectiveness Evaluations – Definition, methods, limitations and practical strategies for completion to ensure accuracy. Real World Studies: Design, approval, conduct and analysis Case studies of...
Thursday February 14 4:30 pm Registration 6:00 pm Welcome and Introductions Pierre Coulombe, Dennis Roop, Mary Schwartz 6:30 pm Dinner Keynote Address: Sharon Terry, Genetic Alliance, Washington DC, USA Friday February 15 7:00 am Breakfast buffet for guests and spouses Introduction 7:50-8:00 am Vision 20/20 Mary Schwartz, Pachyonychia...
About 30 million people living in the European Union (EU) suffer from a rare disease. In Europe a disease is considered rare when it has prevalence of 5 in 10,000 people. Treatments of rare diseases have long represented a huge unmet medical need for patients affected by them, as well...
2013 Lysosomal Disease Network (LDN) 9th Annual WORLD Symposium Orlando, Florida – February 12-15, 2013
World Orphan Drug Congress Asia is the largest and most global orphan drug event. This is where industry, government and patients come to uncover the best strategies and technologies to improve orphan drug development, licensure, manufacture, product launch, supply and reimbursement. This is the best chance for you to grow your...