The EUROPLAN 2012-2015 – Inception Workshop on National Planning for Rare Diseases gathers all participants with the following objectives: To share among the participants strengths and weaknesses in developing National Plans and Strategies (NP/NS) on Rare Diseases (RD) To identify opportunities for developing NP/NS on RD To identify targets and stakeholders...
Events
The FDA Office of Orphan Products Development along with the European Medicines Agency (EMA) Orphan Medicines Section will hold an Orphan Product Designation and Grant Workshop on Friday, October 12, 2012, from 8:30 a.m. to 5:30 p.m. The workshop will be held on the FDA’s White Oak Campus in Building...
On behalf of the Executive Committee of the European Huntington´s Disease Network (EHDN), the European Huntington´s Disease Association (EHA), the local organizers and the members of the Programme and Organizing Committee it is our pleasure to cordially invite you to attend the 7th EHDN Plenary Meeting which will be held...
This conference aims to provide an exchange of ideas about genetics, genomics and systems biology in the context of vascular biology to increase our understanding of vascular disease. As such, this innovative workshop will be of interest to a broad spectrum of investigators that do not normally interact with one...
The Joining FORCEs Against Hereditary Cancer Conference is a forum on hereditary breast and ovarian cancer.We welcome anyone concerned about hereditary cancer: cancer survivors, high-risk individuals, those with a BRCA mutation or family history of cancer, and health care providers who treat high-risk patients. Conference website: http://www.facingourrisk.org/events/annual_conference/index.php
Today, biospecimen collections are used by multiple groups for various aims, from basic research through clinical trials. A well-managed biobank is a critical prerequisite for high-quality biological research. The proper collection, processing, storage, and tracking of biospecimens are vital components allowing researchers to better link molecular and clinical information. Thus,...
The Joining FORCEs Against Hereditary Cancer Conference is a forum on hereditary breast and ovarian cancer.We welcome anyone concerned about hereditary cancer: cancer survivors, high-risk individuals, those with a BRCA mutation or family history of cancer, and health care providers who treat high-risk patients. More information Agenda
The 62nd Annual Meeting of the American Society of Human Genetics will be held at the Moscone Center in San Francisco, California from Tuesday, November 6 through Saturday, November 10, 2012. Registration is required for admittance to all scientific sessions, exhibits, posters, and other meeting events (unless otherwise indicated). The...
The organising committee is pleased to invite you to the 10th Asia-Pacific Conference on Human Genetics 2012 (APCHG2012) with the theme “Genetic and Genomic Medicine: Working Together Towards Health For All”. The APCHG2012 will be held in Kuala Lumpur, Malaysia and is organised by the Asia-Pacific Society of Human Genetics...
Description The main objective of the meeting is to bring together clinical research experts in JNCL to focus, for the first time, on establishing common ground for outcomes and infrastructure in support of Phase III Clinical Trials. Towards this end, it is anticipated that at the end of the meeting...
National Tay-Sachs & Allied Diseases Association (NTSAD) is proud to host the 55th annual gala. Join us as we honor the organization’s anniversary of 55 years providing care for families and leading the fight to bring treatments to trial. We can all look ahead to what the next chapter holds...
National Tay-Sachs & Allied Diseases Association (NTSAD) is proud to host the 55th annual gala. Join us as we honor the organization’s anniversary of 55 years providing care for families and leading the fight to bring treatments to trial. We can all look ahead to what the next chapter holds...
Europe’s leading forum for rare disease research and orphan drug advancement The 3rd annual World Orphan Drug Congress provides the most comprehensive yet focused forum for the rare disease industry. With 3 dedicated tracks this year, whether your focus is on the successful clinical development of your orphan drug portfolio,...
The Meeting For All Stakeholders in the Rare Disease/Orphan Product Community The US Conference on Rare Diseases & Orphan Products – Shaping the Future Now – annual meeting where stakeholders – patients, patient organizations, researchers, drug and device companies, investors, thought leaders and government – meet to focus on rare...
The European Society for Immunodeficiencies (ESID) is a non-profit organization with multiple aims. The main objectives are to facilitate the exchange of ideas and information among doctors, nurses, biomedical investigators, patients and their families concerned with primary immunodeficiency diseases and also to promote research on causes, mechanisms and treatment of...
Ataxia UK and Ataxia Ireland are jointly hosting an international Ataxia Research Conference in London on 1-3 November 2012. Booking has now opened. For the programme, venue details and online booking form please see the information page. Full programme
The First International Symposium on Ehlers-Danlos Syndrome aims to review the latest develepments for Ehlers-Danlos Syndrome, both and the clinical and molecular level. The symposium should provide a forum where a wide scope of medical specialities including orthopedic surgeons, rehabilitation physicians, rheumatologists, cardiologists, dermatologists, molecular biologists and geneticists can interact...
Tuberous Sclerosis Complex International (TSCi) is a world-wide consortium of existing tuberous sclerosis complex associations and organizations, serving as an avenue of support for those affected by tuberous sclerosis complex (TSC), including individuals, families, caregivers, educators and health care providers. In addition, TSCi provides a forum to share information, exchange...
The EU paediatric regulation has now been in force since 2007 and has considerably changed the place of paediatric drug development in the general drug development process. Drug development is no longer possible without considering children. The aim of this conference is to discuss on a high level where we...
The purpose of the NIH Research Conference (R13) Grant and Cooperative Agreement (U13) Program is to support high quality scientific conferences that are relevant to the public health and to the scientific missions of the participating Institutes and Centers (ICs). Standard application deadlines: December 12 AIDS-related research deadlines: September 7, and...