Every year EURORDIS organises its Membership Meeting in a different European city. This is an occasion for patient representatives to gather and learn from each other. Registration is now open to the EMM 2013 Dubrovnik. Please fill out the registration form and return it to [email protected] Download the Draft agenda...
Events
Global Genes | RARE Project and a host of partners are proud to continue our RARE Webinar Series, a series of educational webcasts this year on relevant and timely topics that should be of interest to the RARE community. Our upcoming webinar will focus on Understanding Essential Health Benefits and...
Don’t miss the opportunity to hear these exciting Business Forum presentations by pediatric institutions. Rare Disease Partnering Summit: Presentations 2:00 – 5:00 pm Rare Disease Partnering Summit Reception, sponsored by Shire: 5:00 – 6:00 pm Join renowned investigators from five world-class pediatric institutions on April 24 from 2-5pm as they...
Despite the hundreds of kinase inhibitors currently in discovery and pre-clinical phases, the number of kinase inhibitors which have been approved and are on the market remains low by comparison. This discrepancy reflects the challenges which accompany the development of ATP-competitive kinase inhibitors, including low specificity and off-target binding. There...
Registration is now open for the June 27-29, 2013 annual IRSF conference for families, caregivers, educators and allied health professionals. Parents and the professionals concerned about those with Rett syndrome and related disorders come together from all over the world, under one roof, to learn the most current recommended care...
Congress World Stem Cells & Regenerative Medicine Congress 2013 is now in its 8th year and is Europe’s largest and most senior conference for the industry. Covering everything from streamlining clinical development, commercialising a stem cell-based therapy and exploiting alternative sources of funding you’ll be sure to find the solutions...
Over 20 million people in the US are currently afflicted by rare disease. However, since the inception of the Orphan Drug Act in 1983, over 350 drugs have received approval by the FDA to combat these ailments- a significant increase from the 10 passed in the decade before. While this...
The Stem Cell Summit 2013 will take place on April 29-30, 2013 in Boston, MA at the Hyatt Regency Boston Hotel. This summit includes two parallel conferences with a couple of joint sessions. The Stem Cell Summit provides cutting-edge information on developments in all areas of stem cell research including...
Since the discovery of RNAi scientists have hoped that by understanding its mechanisms they could transform what has become an invaluable research tool into a game-changing therapeutic modality. Today with more compounds entering the clinic and RNAi-related research expanding in related fields such as microRNA it is clear the field...
GTC is proud to present its Infectious Diseases World Summit 2013, to be held in Boston, MA onJul 08-10, 2013. This summit will bring together experts from academia and industry to discuss cutting edge research and new technologies used in the pharmaceutical and biotech fields. It will also give global biotechnology and pharmaceutical...
We would like to invite you to join us at the Inaugural Nucleic Acid Summit on June 19-21, 2013 in San Francisco, CA. The summit includes a pre-conference workshop as well as the following, co-located conferences: • Workshop: Bioinformatics & Data Management Strategies • 3rd Next-Generation Sequencing • 4th RNAi Research & Therapeutics Since the advent of next-gen...
The start of a biennial International GENCODYS Conference! The increasing power of sequencing allows the elucidation of causative genetic defects and risk factors in cognitive disorders (CD) by analysis of entire exomes and even complete genomes. A wide variety of chromosomal aberrations and a bewildering number of single gene mutations...
GTC is proud to present the Drug Discovery Summit, to be held in Boston, MA on May 8-10, 2013. This summit will bring together experts from academia and industry to discuss cutting edge research and new technologies and discuss the legal and regulatory strategies involved in the pharmaceutical and biotech fields. The conference also...
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Hematology is a specialty that covers everything to do with blood: its origin in the bone marrow, diseases of blood and their treatments. The latest data on research and development within the spectrum of hematology are presented. The Congress is aimed at health professionals working or interested in the field...
World Orphan Drug Congress USA is the largest international, commercially-focused event for the advancement of rare disease research and orphan drug development. Register now to network with and hear from biotechs, pharma, patient groups and government agencies improving orphan drug access. register now › download brochure › Comprised of An...
Musculoskeletal Congress Organizing Committee Angela Forsyth, chair – U.S.A. Mauricio Silva, vice-chair – U.S.A. Nicholas Goddard, junior chair – U.K. Neil Frick, NHF – U.S.A. Assad Haffar, WFH programs deputy director – Canada Maria Milagros Salas, WFH congress and meetings...
The first IRDiRC Conference will be held in Dublin, Ireland on 16-17 April 2013 and will be organised by the European Commission during the Irish Presidency of the European Union. The conference aims to gather stakeholders active in the rare disease area from across the globe. In addition to a...
The 5th annual 24 hours of Schweitzer is a team relay for skiers, telemark skiers, and snowboarders beginning on Friday March 22nd 8:30am and ending on Saturday. 3 Intermediate runs will be used over the course of 24 hours. Teams will ski and ride for prizes, bragging rights and most...
6th Annual Hope For Holt 6th Annual Hearts for Holt Gala Feb 9th, 2013 For more information – click here The images from the “Hope for Holt 2011” event are available to be viewed at the following online gallery: http://briantreffeisen.smugmug.com/Events/Hope-for-Holt-2011 PASSWORD = grier (all lower case) HOLT Wine...