The Myotonic Dystrophy Foundation Canadian support group is meeting again soon! This group meets the first Tuesday of every other month, from 7.00-9.00pm. Villa Marconi 1026 Baseline Rd. Ottawa, Ontario K2C 0AC Canada Free parking is available for all guests. The support group will meet in the...
Events
The Myotonic Dystrophy Foundation Canadian support group is meeting again soon! This group meets the first Tuesday of every other month, from 7.00-9.00pm. Villa Marconi 1026 Baseline Rd. Ottawa, Ontario K2C 0AC Canada Free parking is available for all guests. The support group will meet in the...
The Myotonic Dystrophy Foundation Canadian support group is meeting again soon! This group meets the first Tuesday of every other month, from 7.00-9.00pm. Villa Marconi 1026 Baseline Rd. Ottawa, Ontario K2C 0AC Canada Free parking is available for all guests. The support group will meet in the...
The 2nd Biomarker Meeting: Personalized Reproductive Medicine; Biomarkers for the Assessment of Ovarian Reserve, Gametes, Embryos, Endometrium and Pregnancy. The aim of the Meeting is to provide the Human Reproductive Field state of the art developments in personalized medicine.The participants will be informed of the existing and rapidly developing diagnostic...
The Pulmonary Hypertension Association’s 2014 International Pulmonary Hypertension Conference and Scientific Sessions, themed Racing Toward a Cure, is the largest gathering of pulmonary hypertension patients, family members, friends and medical professionals in the world. This unique event brings together the PH community for three days of educational sessions and networking....
Euromit 2014 will be the 9th in a series of international conferences dedicated to understanding how mitochondria are involved in disease. Since the late 1980s, when the first disease-causing lesions in mitochondrial DNA were described, the field of mitochondrial pathology has grown to become one of the most important...
South Central Region Family Fun Event 2014 Event Agenda: 3 – 4:30 PM Enjoy food, fun and fellowship. Introductory time to new families! Pizza and salad will be provided. Please bring a dessert to share 4:30 – Tour of “My Possibilities” website: mypossibilities.org Come join us and see...
Join RDLA and 200 rare disease advocates in Washington, DC for Rare Disease Day – Week, February 25th – 27th 2014. Tuesday, February 25th Legislative Conference National Press Club, 529 14th Street NW, Washington, DC (Near the White House & Metro Center) 8:15 am – 9:00 am Registration...
The families of the Williams Syndrome Association are cordially invited to an educational discussion regarding various topics that may be helpful to parents and families. A light breakfast, refreshments, and snacks will be provided. 8:00am – Registration / Light breakfast 9:00am – Guardianship and Alternatives to Guardianship 10:15am – Break...
Objectives of the NCL2014 Meeting: The NCL Scientific Congress has been held approximately biennially on alternate sides of the Atlantic, with meetings in the USA or Europe. This is the only international forum that brings together those with interests in basic science and clinical care for this group of profoundly...
Participate to a fundraiser in honor of Mia Sawdaye! There will be food, raffle, and music. Tickets are $25 each. All proceeds benefit the Williams Syndrome Association. Contact: Kerry Shorrock – [email protected]
Myotoic Dystrophy Foundation is an organization of families traveling the DM path together. They support each other and provide information. The Orange County support group meets quarterly in Fountain Valley, CA. For more information, please contact Loraine Dressler at 714-962-6053 or [email protected].
Myotoic Dystrophy Foundation is an organization of families traveling the DM path together. They support each other and provide information. The Orange County support group meets quarterly in Fountain Valley, CA. For more information, please contact Loraine Dressler at 714-962-6053 or [email protected].
Myotoic Dystrophy Foundation is an organization of families traveling the DM path together. They are here to support each other and provide information. The Orange County support group meets quarterly in Fountain Valley, CA. For more information, please contact Loraine Dressler at 714-962-6053 or [email protected].
Jody Nissan, and a group of dedicated volunteers fondly known as the HopeCrew, is organizing her 2nd annual Charity Ball and Silent Auction to benefit the HHT Foundation. This event will feature a silent auction, dinner, live entertainment and wildly popular cake auction. We encourage anyone who lives in this...
Myotoic Dystrophy Foundation is an organization of families traveling the DM path together. They are here to support each other and provide information. The Orange County support group meets quarterly in Fountain Valley, CA The Northwest Portland group meets on the 3rd Wednesday, every other month, from 10:30 am –...
Myotoic Dystrophy Foundation is an organization of families traveling the DM path together. They are here to support each other and provide information. The Orange County support group meets quarterly in Fountain Valley, CA. For more information, please contact Loraine Dressler at 714-962-6053 or [email protected].
LIVE Webinar: Managing Chronic Nosebleeds: Current Therapies and Cutting-Edge Treatments The HHT Foundation webinar series will inform supporters of the latest information in HHT treatment, medicine and research but will also build and strengthen the HHT community. The live webinars will be with physicians and include Q&A. Each webinar will...
The HHT Foundation has announced that its 17th National Patient and Family Conference will be held July 18-20, 2014 in Santa Clara, CA.
Come along for a magical Spirit of Christmas concert at Hyndland Paris Church. With performances and readings from local schools and community groups, it’s set to be an amazing evening, and with all proceeds going to the Muscular Dystrophy Campaign, it’s a brilliant way to celebrate Christmas. For more information...