mineralizing angioplasty
Overview
My son , Andy Rakoczy , was diagnosed at Childens Hosp , Vancouver ,B.C with an expectation of almost immediate death , stroke or heart attack .Then they said he would surely die when it hit his brain stem and that happened at age 10 .They also did a biobsy of his brain and discovered the entire surface to be shrivelled and nothing they had seen before .He is now 25 ,severelly brain damaged but finding his way .He has learned and grown .Does his best in every situation .We have been told he is the only case in the world .He has far outlived expectation .
Symptoms
Artiries in brain filled with calcium .His brain surface is totally shrivelled ,he has colesturall levells of 500 + .Calcification reached his brain stem at age 10 .He is brain damaged but learning and thriving .
Causes
Unknown
Prevention
unknown
Diagnosis
Mineralizing Angioplasty , with shrivelled brain surface and extremely elevated collesteral levells of 500+
Prognosis
He was not expected to live longer than age 7 .
Treatment
None known
Resources
Dont listen to the proffesionals who may not know what will happen , it can destroy years of your life trying to prepare yourself for losing your child .Wait and see for yourself .