Ceroid lipofuscinosis – Neuronal 6
Ceroid lipofuscinosis - Neuronal 6 (also known as CLN6 and Variant late infantile neuronal ceroid lipofuscinosis) is a rare metabolic disorder that affects the nervous system. It is characterized by intracellular accumulation of autofluorescent liposomal material, and clinically by seizures, dementia, visual loss, and/or cerebral atrophy. CLN6 disease is caused by changes (mutations) in the CLN6 gene and is inherited in an autosomal recessive manner. The lipopigment patterns observed most often in CLN6 comprise mixed combinations of granular, curvilinear, and fingerprint profiles. It occurs predominantly in people of Portuguese, Indian, Pakistani, or Czech ancestry. The incidence of CLN6 disease is unknown; more than 125 cases have been described in the scientific literature.
Signs and symptoms of the condition generally develop between ages 18 months and 8 years, although later onset cases have been reported. Affected people may experience loss of muscle coordination (ataxia), seizures that do not respond to medications, muscle twitches (myoclonus), visual impairment, and developmental regression (loss of previously acquired skills). Treatment options are limited to therapies that can help relieve some of the symptoms.
