Psycho-social Impact of Amelogenesis and Dentinogenesis Imperfecta
Psycho-social Impact of Amelogenesis and Dentinogenesis Imperfecta in Young People
The purpose of this research is to study the impact of dentinogenesis (DI) and amelogenesis
(AI) imperfecta on oral quality of life, exposure to bullying and dental anxiety in a
population of adolescents. We will use validated scales to evaluate the impact of bullying on
the oral quality of live of youth aged 10 to 18 years, with non-syndromic DI or AI treated in
seven national competence or reference centers in rare oral diseases.
Child Oral Health Impact Profile (COHIP)
* Includes publications given by the data provider as well as publications identified by National Clinical Trials Identifier (NCT ID) in Medline.
Primary Completion Date
- be between 10 and 18 years of age,
- consult in the O-Rare CRMRs of Strasbourg and Paris-Rothschild or the CCMRs of
Bordeaux, Lyon, Marseille, Nantes, Toulouse for a care or follow-up consultation
- having a non-syndromic amelogenesis imperfecta or dentinogenesis imperfecta
- having access to a cell phone and/or tablet and/or personal or family computer
- covered by the social security of one of his parents
- understand French and one of whose parents (or legal representative) understands
- have declared his or her non-opposition and one of whose parents (or legal
representative) has declared his or her non-opposition to participate in the study.
- Child presenting for diagnostic consultation and child who cannot read or whose 2
parents (legal representatives) cannot read