Clinical Care Consortium of Telomere-Associated Ailments (CCCTAA) Database

Dyskeratosis congenita

Clinical Care Consortium of Telomere-Associated Ailments (CCCTAA) Database Needs Assessment for Individuals and Families Affected by Dyskeratosis Congenita (DC) and Related Telomere Biology Disorders (TBD) Haploidentical HCT for Severe Aplastic Anemia Stem Cell Transplant (SCT) for Dyskeratosis Congenita or SAA Hematopoietic Stem Cell Transplant for Dyskeratosis Congenita or Severe Aplastic Anemia