What is NGLY1 Deficiency
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11 years ago
Videos
Treatrment Options Waldenstrom’s Macroglobulinemia
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Lymphoma Overview Waldenstrom’s Macroglobulinemia
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Improving Outcomes in Melanoma
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Liam Feeley´s story (a rare genetic disorder canno stop him from doing the things he loves)
368 views |
11 years ago
Dusty’s Trail Summit Of Borneo: A Duchenne Story
352 views |
11 years ago
Lilliane’s Story: Life with Scleroderma
295 views |
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Hirschsprung’s disease
310 views |
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Von Willebrand Disease – Bleeding disorder
309 views |
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Microcephaly-capillary Malformation Syndrome – Battling a rare genetic disorder
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Krabbe Disease
449 views |
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Mastocytosis
303 views |
11 years ago