What is NGLY1 Deficiency
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11 years ago
Videos
Treatrment Options Waldenstrom’s Macroglobulinemia
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Lymphoma Overview Waldenstrom’s Macroglobulinemia
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Improving Outcomes in Melanoma
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Liam Feeley´s story (a rare genetic disorder canno stop him from doing the things he loves)
356 views |
11 years ago
Dusty’s Trail Summit Of Borneo: A Duchenne Story
338 views |
11 years ago
Lilliane’s Story: Life with Scleroderma
287 views |
11 years ago
Hirschsprung’s disease
300 views |
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Von Willebrand Disease – Bleeding disorder
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11 years ago
Microcephaly-capillary Malformation Syndrome – Battling a rare genetic disorder
679 views |
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Krabbe Disease
439 views |
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Mastocytosis
292 views |
11 years ago