Zürich, Switzerland – People living with RMDs can now fill out the survey online, sharing their experiences to help build a comprehensive understanding of their disease’s impact. The data collected will be invaluable for researchers, healthcare professionals, and patients themselves, providing insights into the burden of RMDs and identifying areas for improvement in care.
EULAR is committed to inclusivity and accessibility; the survey will soon be available in multiple European languages in addition to English. This ensures that a diverse range of patients can contribute their perspectives, enhancing the richness and applicability of the data.
Participants will answer a baseline survey covering demographic information, RMD diagnosis, and its effects on their quality of life. Follow-up surveys will be conducted bi-annually to track changes over time, supplemented by additional disease-specific questionnaires as needed. All collected information will be de-identified to maintain patient privacy in compliance with data protection regulations.
EULAR encourages all individuals living with RMDs to take part in this important survey and urges healthcare professionals to promote participation among their patients. For more information and to participate in the survey, please visit our website by clicking on the following link https://www.eular.org/eular-impact-of-rmds-survey
About EULAR
EULAR is the European umbrella organisation representing scientific societies, health professional associations and organisations for people with rheumatic and musculoskeletal diseases (RMDs). EULAR aims to reduce the burden of RMDs on individuals and society and to improve the treatment, prevention and rehabilitation of RMDs. To this end, EULAR fosters excellence in education and research in the field of rheumatology. It promotes the translation of research advances into daily care and fights for the recognition of the needs of people with RMDs by the EU institutions through advocacy action.
Contact
Ana Lainez Millan
European Alliance of Associations for Rheumatology (EULAR)
[email protected]