Networks
The National Fabry Disease Foundation (NFDF) is an organization dedicated to supporting the Fabry disease community. Our five primary functions are assisting with Fabry disease education, facilitating Fabry disease identification to improve Fabry disease recognition and diagnosis, providing various forms of assistance to individuals with Fabry disease, supporting Fabry disease...
National Foundation for Ectodermal Dysplasias National Foundation for Ectodermal Dysplasias mission is to empower and connect people touched by ectodermal dysplasias through education, support, and research.
The mission of this foundation is to empower and connect people touched by ectodermal dysplasias through education, support and research. The National Foundation for Ectodermal Dysplasias will be known; As a recognized leader among health-related nonprofit organizations For providing comprehensive services with loving care to individuals affected by ectodermal dysplasias...
The National Gaucher Foundation (NGF), a non-profit organization established in 1984, has funded millions of dollars toward the cause, treatments and cure for Gaucher Disease. We are an objective, independent voice of the Gaucher community, dedicated to providing leadership, outreach and innovative thinking. We offer a wide range of programs...
The National Heart, Lung, and Blood Institute (NHLBI) provides global leadership for a research, training, and education program to promote the prevention and treatment of heart, lung, and blood diseases and enhance the health of all individuals so that they can live longer and more fulfilling lives.
Learning about Porphyria
The National Human Genome Research Institute began as the National Center for Human Genome Research (NCHGR), which was established in 1989 to carry out the role of the National Institutes of Health (NIH) in the International Human Genome Project (HGP).