Networks
Sucraid® is the first and only pharmacological therapy approved by the FDA as a simple, safe and effective enzyme replacement therapy of the genetically determined sucrase deficiency which is part of congenital sucrase-isomaltase disease (CSID).
A further page with interesting information and links on homocystinuria, http://www.medicalhomeportal.org/newborn/homocystinuria
The Hormone Health Network is the nation’s endocrine patient education resource.We are committed to helping patients have more informed discussions with their health care providers about hormone health, disease, and treatment. All of our educational resources are based on the clinical and scientific expertise of The Endocrine Society, the world’s...
HHMI, a non-profit medical research organization that ranks as one of the nation’s largest philanthropies, plays a powerful role in advancing biomedical research and science education in the U.S. In the past two decades HHMI has made investments of more than $8.3 billion for the support, training, and education of...
The Human Growth Foundation is a voluntary, non-profit organization whose mission is to help children, and adults with disorders of growth and growth hormone through research, education, support, and advocacy. The Foundation is dedicated to helping medical science to better understand the process of growth. It is composed of concerned...
The Humate-P.com website offers educational materials and programs for patients, caregivers and healthcare professionals. Features include information on diagnosing VWD, online dosage calculators, and patient support programs.
The Huntington Society of Canada is a not-for-profit charitable organization which raises funds to deliver individual and group counselling service to support individuals and families living with Huntington disease (HD) and to fund medical research to delay or stop the progression of the disease. The Society also works with health...
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with Huntington’s disease and...
Hyperparathyroidism is an excess of parathyroid hormone in the bloodstream due to overactivity of one or more of the body’s four parathyroid glands. These oval, grain-of-rice-sized glands are located in your neck. The parathyroid glands produce parathyroid hormone, which helps maintain an appropriate balance of calcium in the bloodstream and...
They provide support, information and advocacy for patients, their families, friends and carers. We are run entirely by a small, committed team of volunteers who are patients themselves and understand how challenging and isolating it can be to live with a rare long-term condition. New members often comment on how...
The Hypoparathyroidism Association, Inc. is a voluntary, non-profit organization dedicated to improving the lives of people with all forms of Hypoparathyroidism, a rare medical disorder, by maintaining a worldwide network of support, and promoting public, as well as professional, awareness of this disorder through education with our website, quarterly newsletter,...