The National Foundation for Peroneal Muscular Atrophy (NFPMA) was incorporated in 1983 in Pennsylvania as a 501(c)(3) federally recognized charity. The original founder, Dr. Howard Shapiro, was, himself, a patient with CMT and when he began the organization. He hoped to create interest in the disorder within the medical community...
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CHDI Foundation is a privately-funded, not-for-profit biomedical research organization devoted to a single disease – Huntington’s disease. Our mission is to develop drugs that will slow the progression of Huntington’s disease and provide meaningful clinical benefit to patients as quickly as possible. 350 Seventh Ave, Suite 200 New York, NY 10001 Telephone: 212-239-9300 Fax: 212-239-2101 E-mail: [email protected] Website: http://chdifoundation.org
The chILD Foundation is a 501(c)(3) non-profit organization. Tax identification information is available upon request from chILD Foundation Board. Their mission is to accelerate research to cure all forms of Children’s Interstitial and Diffuse Lung Disease (chILD) and to provide compassionate support, education, and hope to children and families affected by...
Climb is the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of families worldwide. Their mission is the world’s leading advocate and provider of support to those affected by Inherited Metabolic Disorders – today and tomorrow. Their vision is to raise awareness and provide bespoke support to families, patients...
Climb is the leading patient organisation for Inherited Metabolic Disorders, supporting thousands of patients worldwide. Climb Building 176 Nantwich Road Crewe CW2 6BG United Kingdom Toll-free: 0800 652 3181 Telephone: 0845 241 2173 E-mail: [email protected]: http://www.climb.org.uk
Climb was inspired by Jennifer Rachel Greene (1978 – 2007) who was born with a rare metabolic disorder called Cystinosis. Finding little information and support available following this devastating diagnosis, Jen’s parents, Peter and Lesley Greene, with help from family, friends and the medical profession, launched the charity in November...