Networks
The Canadian Ectodermal Dysplasias Syndromes Association (CEDSA) was established in April 2010 to answer a need for information and services geared to Canadians and their families on national funding and resources. Around the world there are a number of well-established and excellent associations providing information, funding research and acting as leaders...
The Canadian Fabry Association (CFA) is a non-profit organization to raise awareness and educate the public about Fabry disease.
The Canadian Hemophilia Society strives to improve the health and quality of life for all people with inherited bleeding disorders and to find a cure.
Canadian Hidradenitis Suppurativa Foundation (CHSF) 1385 Bank Street, Suite 425 Ottawa ON K1H 8N4 Canada E-mail: [email protected]: http://hs-foundationcanada.org/en/home/
CIPO’s mission is to provide advocacy, support and education to all immunodeficient patients diagnosed and not yet diagnosed, in Canada.
The Canadian Society for Mucopolysaccharide and Related Diseases Inc. (The Canadian MPS Society), founded in 1984, serves all Canadians affected by MPS and related diseases through support, education, advocacy and by advancing research. When families learn that their child has been diagnosed with MPS, a rare, progressive and incurable disease...