International Foundation for CDKL5 Research

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Join the Registry

There is always a supply of hope on hand here! Welcome to the International Foundation for CDKL5 Research. This site is dedicated to anyone who is affected by CDKL5. We hope that through this site, no family will ever again have to face this diagnosis alone. We are here to welcome you, bring encouragement, educate and give you a place where you can find answers, understanding, and a sense of family, strength and peace. Together, we will find a cure! 
We invite you to explore the site and keep checking back as new information will be coming fast and we will constantly be updating with new information.