Acid Maltase Deficiency Association (AMDA)
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The Acid Maltase Deficiency Association was established in 1995 to assist in funding research and to promote public awareness of Pompe disease. Pompe disease is one of a family of 49 rare genetic disorders known as Lysosomal Storage Diseases or LSDs. Pompe disease is also known as Acid Maltase Deficiency or Glycogen Storage Disease type II. It affects an estimated 5,000 to 10,000 people in the developed world.
P.O. Box 700248
San Antonio, TX 78270
Telephone: 210-494-6144
Fax: 210-490-7161
E-mail: [email protected]
Website: http://www.amda-pompe.org