Networks

Founded in 2000 by brothers Albert Rose and Michael Rosenzweig, PhD, the Pulmonary Fibrosis Foundation is a 501(c)(3) nonprofit organization dedicated to identifying effective PF treatments and assisting those living with the disease. The brothers experienced firsthand the devastating effects of PF when their sister Claire passed away from the...
The Screening, Technology And Research in Genetics (STAR-G) Project began as a multi-state collaborative effort, led by the Hawai‘i Department of Health, to obtain research data, identify strategies, and develop materials for addressing the financial, ethical, legal, and social issues (FELSI) surrounding the use of MS/MS for neonatal metabolic screening...
The Scripps Research Institute (TSRI), one of the world’s largest, private, non-profit research organizations, stands at the forefront of basic biomedical science, a vital segment of medical research that seeks to comprehend the most fundamental processes of life. Over the last decades, the institute has established a lengthy track record...
The mission of this site is to provide sickle cell patient and their families and health care providers with professional education, news, research updates and access to sickle cell resources worldwide. Our goals are: to empower patients and families take control of their health and their lives, to break the...
The Skin Cancer Foundation has set the standard for educating the public and the medical profession about skin cancer, its prevention by means of sun protection, the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world’s most common cancer,...
The Skin Cancer Foundation has set the standard for educating the public and the medical profession about skin cancer, its prevention by means of sun protection, the need for early detection, and prompt, effective treatment. It is the only international organization devoted solely to combating the world’s most common cancer,...
Their mission is to save lives by meeting the most critical needs in our communities and investing in breakthrough research to prevent and cure breast cancer.
The Tiny Miracles Foundation (TTMF) is a nonprofit charity based in Fairfield County, CT, dedicated to helping families with premature babies. We know from personal experience that the premature birth of a child can be a shocking, isolating and frightening experience for many families. Although area hospitals are able to...
The Transverse Myelitis Association (TMA) is a not-for-profit international foundation dedicated to the support of children, adolescents, and adults with a spectrum of rare neuro-immune disorders including: Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON) and Transverse Myelitis (TM), including Acute Flaccid Myelitis (AFM). Founded in...
The Twin to Twin Transfusion Syndrome Foundation is an international, 501c.3. nonprofit organization. All donations to the organization are tax-deductible. Our Federal Tax ID# is 34-1740578. The Foundation was created by Mary Slaman-Forsythe, of Bay Village, Ohio, USA after her twin pregnancy with twin to twin transfusion syndrome in 1989....
The UMDF was founded in 1996 through a merger of several smaller foundations established by those who lost loved ones to the disease. Starting as a volunteer organization based in the basement of a home, the UMDF has grown into a nationally recognized, non-profit organization.The UMDF offers support to all...
The Urology Care Foundation is committed to advancing urology research and education. We collaborate with researchers, health care professionals, patients and caregivers to improve patients’ lives. Since 1987, our unique relationship with the American Urological Association (AUA), an organization of more than 21,000 members, has positioned the Foundation as a...
THERAKOS Photopheresis is an innovative cellular therapy. We are actively engaged in basic research, have an expanding program of clinical trials, and are supporting innovative independent studies within the academic and medical community.
ThinkGenetic locates individuals with diagnosed and undiagnosed genetic diseases using artificial intelligence (AI) solutions. Co-founded by a patient advocate and a genetic counselor, we know firsthand that people can wait a long time to receive a genetic diagnosis. People also have the power within themselves to shorten this diagnostic odyssey....
According to the National Cancer Institute, there are about 56,000 new cases of thyroid cancer in the US each year, and the majority of those diagnoses are papillary thyroid cancer—the most common type of thyroid cancer